Cystic Fibrosis Trust
@cysticfibrosis
We're dedicated to uniting for a life unlimited for those living with cystic fibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays. cysticfibrosis.org.uk
We’re proud to share that last month we passed the AMRC Expert Review Audit. Meeting AMRC's six principles of expert review confirms that we use robust and rigorous research funding processes; helping us to fund the best research and improve lives for everyone with CF. ➡️ https://ow.ly/JEEX50Zwt38
Rob entered the raffle last year because his three-year-old granddaughter, Sienna, lives with cystic fibrosis. He wanted to help fund the research and support that’s transforming the lives of families like his. Buy your ticket today! ➡️ cysticfibrosis.org.uk/summerraffle #cysticfibrosis #cftrust
We have developed a new research funding partnership with Guts Charity UK to boost pancreatitis research that benefits people with #cysticfibrosis with #pancreatitis. ➡️ https://ow.ly/Bj9l50Zq4yn
We take a look at several clinical studies currently underway hoping to improve how we detect and treat infections – and how you could get involved. This includes the Precision P3 study – looking at new ways to test for lung infections without using sputum samples. ➡️ https://ow.ly/NvH950Znbsl
Last week concluded the last of our recent visits to the four Innovation Hubs that make up our CF Lung Health Network, co-funded by the Trust and LifeArc. Swipe for a recap of the four programmes and click the link to find out more. https://ow.ly/qPMi50Zl7B4 #cysticfibrosis
On today's episode of our podcast #CForYourself, we're talking all about managing finances and CF. Our host Lucy is joined by Rachel, who shares some practical ways to reduce household bills, top tips for budgeting, and what can help you navigate money-stress. ➡️ https://ow.ly/oquM50ZkAHa
We visited researchers from the Precision-CF team – part of our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc. Visit our website to find out more. ➡️ https://ow.ly/L1nX50Zja84 #cysticfibrosis #cftrust #researchwednesday
Today, the Government announced that health assessments for disability and sickness benefits will be audio recorded as standard to improve transparency in the benefit system. Click the link to read the full statement. ➡️ https://ow.ly/xI1T50ZijSX #cysticfibrosis #DisabilityBenefits #cftrust #PIP
Today is #WorldMicrobiomeDay! We spoke to early career researchers Heritage and Lillie to find out more about the LUNG microbiome and why they’re studying it to improve treatments for CF lung infections. ➡️ https://ow.ly/nBox50ZhuyN #PrecisionCF LifeArc #cysticfibrosis #cftrust
We’re recruiting for a Head of Registry Operations. We're looking for someone to lead the operations of the UK CF Registry, driving the quality, integrity and impact of world-leading #cysticfibrosis data. 🗓️ Closes 11.59pm on Monday 20 July. ➡️ https://ow.ly/1iVx50YEQuo
At the beginning of June, around 2,000 people working in CF gathered at the European CF Conference to hear updates, exchange ideas and make new partnerships. Read our blog of some of our highlights from the meeting. ➡️ https://ow.ly/XMpZ50Zg9Vw #ResearchWednesday #cysticfibrosis #cftrust #ECFS
An new study linking UK CF Registry data with a cancer registry for the first time will help determine the best approaches to cancer screening, testing, and treatment for people with cystic fibrosis. ➡️ https://ow.ly/E7te50ZfNoz #cysticfibrosis #cftrust #CancerResearch #CancerScreening
Join us for the next CF LIVE about cystic fibrosis in South Asian communities, where Dr Maya Desai will explore “Is CF different in South Asian families?” 🗓️ Wednesday 15 July, 7.00 pm. https://ow.ly/NyfY50ZfycF #cysticfibrosis #cftrust #OurStoriesMatter #UnityinDiversity #SouthAsianHeritageMonth
We’re proud to be one of 89 charities awarded a share of NIHR's £37m investment, supporting 800+ early-career researchers. This will help our researchers at a crucial stage of their careers, empowering them to drive future breakthroughs that save and improve lives. ➡️ https://ow.ly/jH1350ZccCN
From supporting the CF researchers of the future, to funding research that can make a difference for everyone with CF, find out how we are making progress thanks to your donations. ➡️https://ow.ly/WpK350ZbPI5 #ResearchWednesday #CFtrust #cysticfibrosis
It’s a big week for CF researchers, doctors and CF teams around Europe this week, as the #ECFS conference is taking place! It’s a time to discuss the latest advances in CF research, meet colleagues to set up new studies together and ensure that we’re supporting everyone with CF across Europe.
Highly effective modulator therapies have transformed life for many people with CF. But they don't work for everyone. That’s why finding new treatments that work for everyone with cystic fibrosis is vital and remains one of our top research priorities. ➡️ https://ow.ly/L1o450Z67Se
In the latest episode of our CForYourself podcast, we're talking all about CF diabetes. Our host Lucy chats to Joseph about his experience of managing the condition day to day, and to Professor Vicky Salem about her research into a potential new way to treat CF diabetes. ➡️ https://ow.ly/yTBo50Z2Kc3
Last week, the Association of the British Pharmaceutical Industry (ABPI) published a new report about medicine shortages in the UK. The report explains why shortages happen, how supply chains can be made stronger, and how patients can be better protected #cysticfibrosis ➡️ https://ow.ly/1E0750Z0519
Tilly and Joseph, who both live with CF diabetes, spoke to Dr Ildem Akerman and Prof Victoria Salem about their Trust-funded research project investigating a novel type of treatment for CF diabetes. ➡️ https://www.cysticfibrosis.org.uk/news/putting-cf-diabetes-research-in-the-spotlight
Join us for a free webinar on 21 May to hear from Dr Robert Sandler, Jocelyn Choyce and Bill Morgan, about key recommendations for CF care from Robert’s PhD research, and tips on how to implement these in practice. Find out more and register ➡️ https://ow.ly/26oA50YRbry
Last week, the biggest changes to how clinical studies are regulated in more than 20 years came into effect. The new regulations are designed to make study set-up quicker and ensure people’s lived experience plays a bigger role in shaping research. (continued 1/4) #cysticfibrosis #cftrust
We’ve worked with our partners in the CF AMR Syndicate to create a virtual biobank of infection-causing bugs, to speed up the development of new treatments for cystic fibrosis. Read more on our blog. https://ow.ly/N63650YRBpj
We visited the Heart and Lung Research Institute in Cambridge, to meet researchers who are part of our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc. Find out more about the Flare-CF Innovation Hub on our website. ➡️ https://ow.ly/vlmb50YTabj
This week, we’re sharing stories from our 2026 Research Impact Report. Through our amazing Involvement Group, we worked with the CF community to shape Dr Charlotte Boughton’s study investigating a new way to manage CF diabetes. ➡️ https://ow.ly/k3Mn50YRATk #CysticFibrosis #CFTrust #Diabetes
Our 2026 Research Impact Report documents some of our incredible progress and discoveries in CF research, all made possible by the generosity of our amazing supporters. Together, we can move closer to a life unlimited by cystic fibrosis. ➡️ https://ow.ly/y7OK50YP7FB #CysticFibrosis #CFTrust
We spoke to PhD student Anaïs about her research investigating a treatment that could be taken alongside an existing antibiotic to improve its effectiveness, daily life as a CF researcher and what she loves most about her work. ➡️ https://ow.ly/JPfo50YNl9K LifeArc #CysticFibrosis #ResearchWednesday
Content warning: this blog touches on life expectancy, transplant and death "Transplant is an incredible and precious gift. It has given me time, health, opportunities to make memories, and moments I once thought I would never have." Read Rosie's story ➡️ https://ow.ly/GHgh50YGufi
Prof James Chalmers talks about bronchiectasis and a clinical trial he is leading called AIRTIVITY® that is looking at a new treatment, for people with or without CF. Read our blog to find out more. ➡️ https://ow.ly/iqcP50YFwrw #ResearchWednesday #CFTrust #CysticFibrosis #Bronchiectasis
We're wishing everyone celebrating a very happy and peaceful Easter. 💛 Our social media and helpline will be closed over the long weekend from 4pm today and will reopen on Tuesday 7 April at 10am. For immediate support please contact your CF team, the Samaritans or CALM.