Long Covid Kids
@longcovidkids
The charity supporting & advocating for children & young people with Long Covid & overlapping illness. #LongCovidKids #LongCovid #PaediatricLongCovid #LongCovidAwareness #MECFS
Recommendations for journalists to counter epistemic injustice in reporting Long Covid and similar conditions. pmc.ncbi.nlm.nih.gov/articles/PMC... #Journalists #LongCovid #Children #Childhood
Thank you to the youth editors. Lucinda Eden Savannah Bethan. #LongCovidKids #LongCovid #YouthVoice #YouthAdvocacy
🧡 Keep an eye out between 5 and 6pm this evening! Some of our members and our Chair of Trustees will be featured on Channel 5 News. We're advised this is when the report is expected to air. If you can, please help us spread the word by liking, commenting on posts. 🙏 for your support.
"Participation is the bridge between education and opportunity" @sammiemc.bsky.social, Founder & CEO, LCK Read the full blog: www.longcovidkids.org/post/opportu... #InclusiveEducation #LongCovid #Education #SEND
She smashed it! Congratulations Jana 🙌 🥇 There is still time to donate and help Jana hit her target. 🎯 Shes so close. www.justgiving.com/page/jana-sp... #LondonT100
🌟 Jana has started her triathlon 🌟 She would love to hit her target 🎯. www.justgiving.com/page/jana-sp... #LondonT100 #T100Triathlon #T100 #SwimBikeRun #LongCovidKids
Congratulations to @andyburnham.bsky.social on becoming Prime Minister. We hope the lessons of COVID-19 help shape stronger systems for children and young people—through better healthcare, joined-up education and future preparedness. Childhood doesn't wait. #ChildHealth #PandemicPreparedness
Many of the principles reflected here are ones LCK has consistently advocated for. We'll continue working alongside children, young people, families, professionals, researchers and policymakers to help ensure every child has the opportunity to learn, participate and thrive. 🧡 #SchoolInclusion
This guidance focuses on allergy safety. We now look forward to the wider medical conditions guidance this autumn & hope it reflects the voices, experiences and needs of children and young people living with Long Covid & overlapping illnesses. #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth
Inclusion matters. The guidance strengthens expectations around participation, reasonable adjustments and Individual Healthcare Plans, helping children with medical conditions access education alongside their peers. #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth
The guidance reinforces that children should not be disadvantaged because of a medical condition. Health should never become a barrier to belonging. #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth
The updated guidance recognises the importance of clean indoor air, including good ventilation, air quality monitoring and HEPA filtration. Healthy learning environments benefit everyone. #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth
These changes reflect years of work by families, clinicians, researchers, charities, education professionals and policymakers. #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth
This week the DfE published the first part of its updated statutory guidance on supporting pupils with medical conditions, focusing on allergy safety. There are several encouraging developments 🧵⬇️ #MedicalNeeds #SchoolInclusion #LongCovid #ChildHealth
Case studies can be short or detailed, anonymous or named. If you've shared your story before, you're welcome to resend it. We'll share updates through our newsletter as this work progresses.Sign up via the link on our website. #LongCovidKids #MECFS #SEND #Attendance #Inclusion #ChildrensRights
Children deserve #healthcare, #education & #support that recognises prolonged, fluctuating illness. 🙏 to this family for sharing their story, to @joplatt.bsky.social for supporting these important conversations in Parliament, & to Jessie for helping bring these experiences into the public eye.
As evidence grows and we continue learning from our community, we'll keep developing the resources people need. 🔗https://www.longcovidkids.org/download-resources Please share to help us reach more families and professionals. 💛 #Learning #LongCovid #LongCovidKids #ChildHealth #Community
🍨 Enjoy the weather, maybe in the shade with an ice cream or ice lolly - rest and take care of yourself. #heat #heatwave #Longcovidkids #summer
At Long Covid Kids, we have seen and shared similar experiences reported by many young people. Families regularly share stories of children and young people feeling disbelieved, misunderstood, or dismissed by others.
The survey results supported these personal accounts, suggesting that stigma is not experienced by just a few families but may be a common challenge for many children and young people living with Long Covid. At Long Covid Kids, we have seen similar experiences reported by many of our supporters.
Thank you to everyone raising donations for Long Covid Kids and Friends with #easyfundraising! Not joined yet? Sign up to easyfundraising and when you shop online with your favourite brands, they’ll donate to us. join.easyfundraising.org.uk/long-covid-k... #LongCovid #Fundraising
Meet our Trustees here www.longcovidkids.org/trustees #LongCovidKids #LongCovid #Charity #Trustees #Volunteering
Meet our Trustees here www.longcovidkids.org/trustees #LongCovidKids #LongCovid #Charity #Trustees #Volunteering
Meet our Trustees here www.longcovidkids.org/trustees #LongCovidKids #LongCovid #Charity #Trustees #Volunteering
Meet our Trustees here www.longcovidkids.org/trustees #LongCovidKids #LongCovid #Charity #Trustees #Volunteering
Together, they strengthen Long Covid Kids’ ability to advocate for young people & families, contribute to research and policy discussions, and help shape the future direction of the charity. Meet our Trustees here www.longcovidkids.org/trustees #LongCovidKids #LongCovid #ChildHealth #HealthEquity
We are pleased to welcome and introduce members of our growing trustee team, bringing together expertise across education, governance, research, safeguarding, operations, children’s rights and social impact. Meet our Trustees here www.longcovidkids.org/trustees #LongCovidKids #LongCovid
Thanks to all the young people, families volunteers, supporters for helping #LongCovidKids continue our mission 💪🏽. Find out more about our #impact. www.longcovidkids.org/impact #charity #longcovid #community
Find the sign up link in the Quick Links list in the footer. www.longcovidkids.org #LongCovidKids #LongCovid #OverlappingIllness #ChildrensCharity
#Newsletter Are you signed up? If you would like to hear our news and stay in touch, sign up to our newsletter via our website. longcovidkids.org/so/27PulWok1 #BankHolidayMonday #Reading #Newsletter