Renegade Research

@renegaderesearch

Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 • Runs @remissionbiome.bsky.social

3995 Siguiendo1922 Seguidores460 Publicaciones

YouTube YouTube YouTube YouTube YouTube Website Bluesky

¿Es tu perfil?Reclámalo y renegaderesearch.dirty.social es tuyo.Reclamar perfil

Renegade Research@renegaderesearch· 29d

Please join us today at 5 pm ET for a webinar we're hosting with @openmedf.bsky.social! Discuss PEM, PESE and PENE with @isabelrb.bsky.social, @tessfalor.bsky.social, @sunsopeningband.bsky.social, Danielle Meadows, Chris Armstrong Register: us02web.zoom.us/webinar/regi... #LongCovid #MECFS #pwME

Renegade Research@renegaderesearch· Mar 27

Join us today, Friday March 27 at 1 pm ET! Let's get ready to rumbllle! Or un-rumble, if that's what your stomach needs 😅 Registration link: us06web.zoom.us/webinar/regi... We'll talk all things brain and gut in #LongCovid and #MECFS with neurogastroenterologist Dr. Zac Spiritos!

Renegade Research@renegaderesearch· Mar 8

Join us March 13 at 1 pm ET (US) for a Research Roundtable with @resiapretorius.bsky.social of @suhealthsci.bsky.social @liverpooluni.bsky.social, @dbkell.bsky.social of @liverpooluni.bsky.social, Jordan Vaughn of MedHelp, Jill Schofield of @cuanschutz.bsky.social 🧵Registration link, research below

Renegade Research@renegaderesearch· Mar 4

Please join us for an X/Twitter Space Discussion for Long COVID Awareness Week on March 17 at 4 pm ET US! (in honor of Long Covid Awareness Day on March 15) Bluesky doesn't have a Spaces-like tool, so we can't host here Moderators: @isabelrb.bsky.social and @emilyrj.bsky.social X space link in 🧵

Renegade Research@renegaderesearch· Mar 3

We have several projects in the works by our citizen/patient scientists! We made a Zeffy page for The Nicotine Test (a followup to our previous Nicotine Test project), to help the budget. PI Troy Roach. Donate to The Nicotine Test project and our other patient-led projects in this thread 🧵

A screenshot of the Renegade Research purple Zeffy crowdfunding page, titles "Accelerate Research and Care for ME/CFS and Long Covid," with a description of Renegade Research. Different donations boxes with varying monetary values are depicted. You'll receive a tax receipt for making a donation.

Renegade Research@renegaderesearch· Mar 1

Check out our new Bonfire merch for Long Covid Awareness! 😎 It's pretty PASC-tacular You can wear these every March or even year-round to get your advocacy on for #LongCovid and #MECFS 💪 Our merch store link: www.bonfire.com/store/renega...

A graphic reading "Long Covid Awareness" "March 2026" "Join Us" with the Bluesky handle @RenegadeResearch and the Renegade Research merch store link: https://www.bonfire.com/store/renegade-research/. Also depicted is the word "fashion" is pink cursive and a black and white graphic of a coat hanger, along with two colorful shirts with white graphics promoting Long Covid Awareness.

Renegade Research@renegaderesearch· Feb 26

We welcome you to join us on Friday, March 27 at 1 pm ET (US) for a Clinician's Roundtable with neurogastroenterologist Dr. Zac Spiritos He will be discussing the Gastrointestinal-Neuroimmune Axis & the Role of Histamine and Mast Cells Registration link below with info on Dr. Spiritos' work 🧵

Renegade Research@renegaderesearch· Feb 25

Our next Clinician's Roundtable: Sleep Dysfunction & Breathing Mechanics with Avram Gold, MD, Assoc. Prof. of Medicine Stony Brook Friday March 6, 2026, 12 pm ET (US) Please share with clinician, researcher, patients networks! Will be recorded 🧵 Registration link with more about Dr. Gold below:

Renegade Research@renegaderesearch· Dec 6

More highlights: - Illness won't abate when brainstem deformative stress is present - immune, autonomic, gastrointestinal dysfunction plus hypometabolic states, sickness response result - The model suggests research avenues, diagnostics, interventions www.sciencedirect.com/science/arti... 6/6

White and blue graphic from the research paper linked in this post. Two examples of triggering events for Mechanical Basis models are depicted: acute infection and mechanical trauma such as whiplash. A flow chart directs acute infection to cause matrix metalloproteins (MMPs) and mast cell activation increases. This then causes connective tissue degradation. That leads to damage to structures that physically support neural tissue, such as the brainstem. This results in brainstem deformative stress. Mechanical trauma flow chart causes the same cascade of events. Brainstem deformative stress leads to Disrupted brainstem nuclei. This leads to Autonomic nervous system dysregulation, Sickness response, Gastrointestinal dysfunction, Hypometabolic state, and Immune dysregulation plus Systemic inflammation/ neuroinflammation. These last two feed back into matrix metalloproteins (MMPs) and mast cell activation increasing, to propel the cycle further. Systemic inflammation and immune dysregulation, mediated by vagal signaling and the CNST, initiate a feedback loop that could further degrade the connective tissue. Disrupted brainstem nuclei cause dysregulation of the multiple systems that are affected in
ME/CFS. Icons of graphics of each bodily component of this cycle are depicted to better explain how these processes occur.

Renegade Research@renegaderesearch· Dec 2

1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community

Renegade Research@renegaderesearch· Nov 16

A 2025 Keystone Conference presentation for “Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study” by @thosvarley.bsky.social, @taraf.bsky.social, @katboniface.bsky.social, @ellybrosius.bsky.social, @isabelrb.bsky.social, @tessfalor.bsky.social, Mike 10/

Image of a research paper poster titled "Identifying transient remissions from ME/CFS associated with antibiotics: A mixed-methods study."
Lists authors and their respective locations.
Five sections titled: Background, Materials and Methods, Plots/Quantitative Results, Volunteer Profiles, Qualitative Results,
See Renegade Research website for more information.

Renegade Research@renegaderesearch· Nov 5

As a nonprofit focused on patient-led and community-based science, we invite #MECFS #pwME #LongCovid patients to help patient communities by volunteering with us! Remote, flexible, no prior experience required Register for our Volunteer Info Session on Nov. 15: us06web.zoom.us/webinar/regi... 2/2

Renegade Research@renegaderesearch· Nov 5

We will host a Volunteer Info Session on Sat., Nov. 15! We're seeking volunteers to help with nonprofit tasks and research projects such as our upcoming Vielight studies Email event@renegade-research.org with event questions and contact@renegade-research.org to volunteer Register in next post 1/2

Green and yellow graphic reads: Volunteers needed to help run red light research studies for ME/CFS!
Be part of a research team of patients for patients dedicated to improving quality of life in our community.
Register for volunteer orientation:
Saturday, November 15 at 9 am Pacific Time US, 12 pm Eastern Time US, 5 pm Greenwich Time UK
www.renegade-research.org/events-list

Renegade Research@renegaderesearch· Nov 5

Please sign up our next Clinician's Roundtable with @jackamatica.bsky.social & Nicholas Boyd-Gibbins of @amaticahealth.bsky.social on Friday, Nov. 21! They'll discuss their MECFS and Long Covid 31 Marker and RNA Sequencing Tests plus their new Clinician Dashboard Register in next post 1/2 #MedSky

Renegade Research@renegaderesearch· Oct 29

In 2023, @katboniface.bsky.social, #TheGlutamateBoss, delighted us with her glutamate studies and carving of the glutamate molecule. To support our community outreach and research, please make a donation! 🙏 (Tax-deductible if permitted by law.) www.zeffy.com/fundraising/...

Candlelit pumpkin of glutamate molecule formula.

Renegade Research@renegaderesearch· Oct 29

Join us once again for an informal @renegaderesearch.bsky.social Halloween art celebration! Carving not required (see thread for details.) No prizes in 2025. Rewards still include bragging rights, endorphins, and doing something fun. Post with the hashtag #ScareME.

3 carved candlelit pumpkins: "Remission Biome," "R50," and a microglial cell.

Renegade Research@renegaderesearch· Oct 18

The recording for our clinician’s roundtable on GLP1/GIP RA with doctors Kaufman and Dempsey is now available on our YT chanel. youtu.be/lC3caaV7WP0?...

Renegade Research@renegaderesearch· Jul 22

Announcement!! 1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows! We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

Renegade Research@renegaderesearch· Jun 24

✅️ Accelerate Research + Care! 🔬 #MECFS #longCOVID Our work impacts the lives of many! Patients + caregivers are listened to and empowered. (campaign link below)

Renegade Research@renegaderesearch· Jun 19

Sharing a link to our @RemissionBiome protocol info page for anyone who is new here, or is not familiar with the project. 🔗 www.remissionbiome.org/about/protoc... #RenegadeResearch #Renegade50

Sharing a link to our @RemissionBiome protocol info page for anyone who is new here or is not familiar with the project.

🔗 https://www.remissionbiome.org/about/protocol-overview #RenegadeResearch #Renegade50

Renegade Research@renegaderesearch· Jun 14

✅️ Weekends are a great time to catch up on #Clinician and #Research Roundtables! 🔗 Check out the past recordings on our Renegade Research YouTube channel at www.youtube.com/@renegaderes... ... #RenegadeResearch

Renegade Research@renegaderesearch· Jun 11

1/ #Prodrome Glia is part of the @remissionbiome protocol. Plasmalogen supplements are some of the most widely used supplements in our community. If you already use prodrome products or plan to discuss with your healthcare team, you can save money and give back to our organization at the same time!

Renegade Research@renegaderesearch· Jun 7

Have you seen the citizen science research on low-dose nicotine? Learn more in this video with Troy at @Canal1point5 at @TheNicotineTest ... #longCovid x.com/Canal1point5...

Screenshot of Troy at @Canal1point5 at @TheNicotineTest

Renegade Research@renegaderesearch· Jun 7

📣 Next time you shop on #Amazon use our affiliate link to help support Renegade Research “at no additional cost to you." Click on the link below and start shopping as you usually do! Our non-profit org receives a small percentage from Amazon which helps our NPO operate. 🔗 t.co/G5zFyvqx4X

Renegade Research@renegaderesearch· Jun 7

Check out this insightful thread by our Renegade Research founder @tessfalor.bsky.social 👇 Here's the unroll ... "Our @remissionbiome.bsky.social team has been investigating how antibiotics can cause remission of #MECFS and #LongCOVID symptoms." threadreaderapp.com/thread/19255...

Screenshot of the this thread on X - Check out this insightful thread by our Renegade Research founder @tessfalor.bsky.social 👇 Here's the unroll ...

"Our @remissionbiome.bsky.social team has been investigating how antibiotics can cause remission of #MECFS and #LongCOVID symptoms."

https://threadreaderapp.com/thread/1925552277244264581.html

Renegade Research@renegaderesearch· Jun 5

2/ Prodrome 🔗 Enter code "Falor25" at prodome.com to save 25% on your next order! This post contains affiliate links. When you place an order using our code, RR earns a small commission at no extra cost to you. This helps our non-profit organization operate.

Renegade Research@renegaderesearch· Jun 5

1/ Prodrome Glia is part of the @remissionbiome protocol. Plasmalogen supplements are widely used in our community. If you already use Prodrome products or plan to discuss with your healthcare team, you can save money and give back to our non-profit at the same time!

Renegade Research@renegaderesearch· Jun 1

Breaking the cycle of panic and neglect: better preparedness for the next #pandemic "5 years after the first #COVID19 case, WHO member states have reached a consensus to strengthen future pandemic prevention, preparedness, response. Will this time be different?" www.thelancet.com/journals/lan...

Screenshot of the Lancet Regional Health article

Renegade Research@renegaderesearch· May 31

Today is the last day of #MECFSawarenessmonth 💙 ✅️ Together let's accelerate research and care for all who are affected by myalgic encephalomyelitis around the globe! www.zeffy.com/en-US/fundra... ... #MECFS #RenegadeResearch