Syd has touched all of our lives forever. We are grateful to Little Words Project for creating a way to honor her. These bracelets with her signature phrases share her message, and $5 of each purchase is donated to CCF.  Order here: https://www.littlewordsproject.com/collections/lwp-x-sydney-towle

📲 CCF’s new CholangioPath app empowers patients to connect with a Patient Advocate, explore treatment information, receive reminders about educational events, and access new resources, making it easier to stay informed and supported throughout your journey. Download today at curecca.org/app

Join our upcoming educational webinar, Targeting HER 2 in Biliary tract cancer with Dr. Shubham Pant, a Professor in the Department of Gastrointestinal (GI) Medical Oncology MD Anderson Cancer Center.  To register, go to curecca.org/webinars today 💚

Sydney Towle, who passed away yesterday, has likely touched your life. This is a difficult loss and, at the same time, are honored to shine a light on her legacy. We invite you to share in the comments how Syd affected your life. We would like to remember her together. 💚

Being diagnosed with cholangiocarcinoma can be overwhelming. Patient Advocates like Kari are here to help. Connecting with a Patient Advocate can help provide you with personalized support, trusted resources, and connections to our community. To connect head to https://curecca.link/patientadvocate

Hope in research, strength in community. This August, create your will free with FreeWill and help the Cholangiocarcinoma Foundation bring a cure for bile duct cancer closer. Head to curecca.link/make-a-will-26 to get started today. 💚

Cancer can develop in any part of the bile duct. Based on location, cholangiocarcinoma is classified into three types: intrahepatic, perihilar, and distal. Different types of CCA can have possible impacts on symptoms as well as treatment options.

Join Triage Cancer for their next webinar, "Managing Health Insurance Transitions," on July 22. These helpful webinars are free and geared to patients and their families. You can register here:  https://triagecancer.org/webinarreg-health-insurance-transitions

Happy Independence Day! 🇺🇸🎆 Celebrating freedom, unity, and the land of the brave. Wishing you a sparkling 4th of July from all of us at CCF!

Please join us for our Annual Industry Update Webinar. ✨ A special opportunity to learn about the latest advances in cholangiocarcinoma treatment and research directly from pharmaceutical companies. ✨ Register at curecca.link/industrywebinar.

"Seven months ago, I was diagnosed with cholangiocarcinoma. Like anyone facing those words for the first time, I was shocked. But my background did help me understand something important right away: hope is possible because of research." -Art. Give to this year’s campaign: curecca.link/c4c26.

💚 Grief looks different for everyone. 💚 Thanks to our sponsor, AstraZeneca, we are able to support families grieving by providing practical resources to help grieving children and young adults who have lost someone to cholangiocarcinoma. Request a free kit at curecca.link/griefcarekit.

"What once was a field with limited understanding and few treatment options has transformed into one driven by scientific discoveries, targeted therapies, and real hope for patients and families." -Dr. Juan Valle We need your support to accelerate cholangiocarcinoma research. curecca.link/c4c26.

Today, we honor Juneteenth, commemorating the end of slavery in the United States and celebrating freedom. At CCF, we recognize that health equity is essential to freedom. We’re committed to listening, learning, and working to ensure all communities have access to information, care, and support.

The 2026 Chicago Cholangiocarcinoma Symposium is set to convene in Chicago, drawing together leading experts, researchers, healthcare professionals, patients, and advocates. 🗓️ September 25, 2026 ⏱️ 8:00am – 3:00pm 📍Gordon Center for Integrative Science 🔗 Register today at curecca.link/chicago26.

"As a Mentee, this program is so important! And as a Mentor, I can't think of anything I'd rather do than give back to the community." CholangioConnect partners you with a mentor so you can get the support you need from someone experienced with this disease. Request a mentor at curecca.link/cc.

The 2026 Los Angeles Cholangiocarcinoma Symposium is set to convene in Los Angeles, drawing together leading experts, researchers, healthcare professionals, patients, and advocates. 🗓️ September 19, 2026 ⏱️ 8:00am – 4:00pm 📍University of Southern California 🔗 curecca.link/la2026

"I’m asking you to support the Cholangiocarcinoma Foundation’s Campaign for the Cure today, so that families, like mine, facing cholangiocarcinoma can have more time together to enjoy the fun stuff." -Keaton Herzer, CCA Survivor. Give today at curecca.link/c4c26.

Fatigue is one of the most common symptoms when undergoing cancer treatment. Some simple ways to decrease fatigue and boost energy levels during treatment: prioritizing rest and getting adequate sleep. Register for Ina® for more tips on managing side effects of treatment at curecca.link.ina.

The Centers for Medicare & Medicaid Services (CMS) is seeking public comments on how prior authorization affects access to laboratory testing, including biomarker tests. If you’ve experienced delays, denials, repeat testing, or added stress, share your story. 🔗curecca.link/cb. Deadline: June 15.

CCF’s new CholangioPath app helps patients connect with a Patient Advocate, access treatment information, get event reminders, and discover valuable resources. Download today at curecca.org/app. Thank you to Jazz Pharmaceuticals, Taiho Oncology, Incyte, and Compass Therapeutics for their support.

20 years ago, a cholangiocarcinoma diagnosis often meant few treatment options, little awareness, limited research, and no patient community. Today, thanks to research, advocacy, and supporters like you, there is more hope and progress. Make a gift today to advance breakthroughs: curecca.link/c4c26.

Syd Towle inspired pj set on sale June 1-15 with 1/2 the proceeds benefitting CCF. Syd, a patient with cholangiocarcinoma, has raised awareness throughout her journey so far, ensuring others feel supported. Order here: https://www.sleepysaturday.com/product-page/sydney-towle-x-sleepy-saturday

The 2026 Cleveland Cholangiocarcinoma Symposium is bringing together leading experts, researchers, and patients for an important day of collaboration, education, and progress in cholangiocarcinoma. 📅 June 26, 2026 📍 Cleveland Clinic  🚗 Parking vouchers provided  🔗 curecca.link/cleveland

Honoring the brave men and women who made the ultimate sacrifice for our freedom. This Memorial Day, we remember and are grateful.

20 years of the Cholangiocarcinoma Foundation: advancing research, supporting patients and families, and driving hope. To honor that milestone, we invite you to join us and support Campaign for the Cure and help power the next chapter of progress.  Make a gift today at curecca.link/c4c26.

We are excited to share that all 2026 Annual Conference recordings are now available on our YouTube Channel. Please click the link in our bio to watch them. #ccf2c26

On Saturday, May 2, Ben Scherer hosted the Second Annual Sam-a-Palooza 5K Family Fun Run/Walk in St. Louis, Missouri, in memory of his father, Sam. The event brought together more than 90 participants and raised over $15,000 for CCF. Thank you, Ben.

Apply to join our team! We are hiring a Research Data Analyst: https://cholangiocarcinoma.org/wp-content/uploads/2026/04/Research-Data-Analyst-Job-Description_04.2026.docx-1.pdf Share with your networks!  #joinourteam #dataanalyses #cancerresearch #nonprofitjobs

What matters most when it comes to your medical care? Join Kate DeBartolo from The Conversation Project for a webinar on starting meaningful conversations about care preferences, values, and wishes with loved ones. Gain practical tips and support.  🗓️ Register today at curecca.link/may14.