Without ACT for ALS, Expanded Access Programs—and the promising therapies, research breakthroughs, and hope they make possible—could end. We've made too much progress as a community to stop here. Ask your representative to vote YES on reauthorizing ACT for ALS: bit.ly/fundALS

ALS prevalence is expected to rise by more than 10% by 2030. More people will need access to promising therapies. That's why ACT for ALS must move forward. ALS doesn't wait. Neither can we. Ask your representative to cosponsor ACT for ALS: bit.ly/fundALS

We've contacted representatives nationwide thanks to your advocacy, and Senators from 11 states have already cosponsored ACT for ALS. Let's keep the momentum going. Ask your Senators to cosponsor today: bit.ly/fundALS

ACT for ALS-funded Expanded Access Programs are a critical source of hope for people like Anne. They can help slow progression in some people living with ALS and generate data that brings us closer to a cure. Ask your representative to cosponsor ACT for ALS at bit.ly/fundALS

Caregivers do so much—and too often carry the financial burden alone. The Credit for Caring Act would provide a federal tax credit to help eligible family caregivers. Tell your legislators to help pass it: bit.ly/credit4care

Happy Friday! 💙 Take one minute before the weekend to help end ALS. Every action—big or small—moves the ALS movement forward. Take ONE quick action today: iamals.org/action

Thanks to your hard work and advocacy, we're closer than ever to reauthorizing ACT for ALS and protecting federal funding for ALS research and access to promising therapies. The House is likely to vote on ACT for ALS next week. Ask your Representative to vote YES: bit.ly/fundALS

🚨 The House is expected to vote on the Take Care of America's Veterans Act—including the Justice for ALS Veterans Act—this week. Now's the time to act. Ask your Reps to support the bill: bit.ly/alsvets Authored by Chairman Mike Bost, Congressman Brian Fitzpatrick, and @repchrispappas.bsky.social

The Tim Lowrey ALS Panel Series is one of our most requested programs. Learn about ALS directly from people living with it and bring an impactful conversation to your workplace, school, or community. Request a panel: bit.ly/TLPS-ALS

Thank you @TeamGleason and @SteveGleason for all your support in driving progress towards passing ACT for ALS. Let's keep this momentum going. Ask your Representatives to VOTE YES on ACT for ALS: bit.ly/fundALS

🎉 ACT for ALS has surpassed 100 House cosponsors—nearly one-quarter of the House! Community advocacy helped make this happen. Advocates like you contacted all of these cosponsors. The House window has closed, but the Senate can still act. Ask your Senators to cosponsor today: bit.ly/fundALS

Only 53 days left to reach our goal! ✈️ Your airline miles can help move the ALS movement closer to a world without ALS. Flying United this summer? Donate your MileagePlus® miles to I AM ALS today: bit.ly/miles4ALS

Quick actions. Real progress. Join the I AM ALS Legislative Affairs Team and help advance policies that bring us closer to a world without ALS. 💙 Get involved: bit.ly/LegTeam

You may have poured a bucket of ice water on your head in 2014—or maybe you're seeing it happen all over again this year. Have you ever wondered, "what happens AFTER the ice bucket challenge?" We've got the answer at bit.ly/push4ALS

Community—we're making progress happen! 💙 Over 10% of the U.S. Senate has now cosponsored ACT for ALS. Your emails, calls, meetings, and advocacy are driving real momentum. Let's keep it going. Ask your Senators to cosponsor ACT for ALS: bit.ly/fundALS

ALS progresses too quickly for many surviving spouses of Veterans to qualify for full DIC benefits under today's rules. The Justice for ALS Veterans Act would fix this unfair policy gap. Urge Congress to pass it: bit.ly/ALSvets

Happy Independence Day! ❤️🤍💙 Today, we're celebrating the power of community and hope. Wishing you a safe, memorable, and meaningful 7/4 from all of us at I AM ALS. 🇺🇸

ACT for ALS changed what's possible in ALS in 2021 by expanding access to promising therapies and accelerating research. Now Congress must reauthorize it to keep that progress going. Ask your Senators to cosponsor ACT for ALS 2.0 today: bit.ly/fundALS

Shoutout to the I AM ALS Legislative Affairs Team! 💙 Just halfway through 2026, they've already led 59 meetings with Congress, generated 10,564 online advocacy actions, and secured 80+ ACT for ALS cosponsors in the House and Senate. Progress takes community. Support their work: bit.ly/LegTeam

The CONNECT for Health Act would make the telehealth flexibilities we relied on during the pandemic a permanent part of Medicare. For people living with ALS, better access to care shouldn't be temporary. Tell your legislators to support the CONNECT for Health Act: bit.ly/ALSConnect

Our advocacy got 17% of the House to cosponsor ACT for ALS 2.0. 💙 Let's keep the momentum going until every Senator has heard from the ALS community. Ask your Senators to cosponsor ACT for ALS today: bit.ly/fundALS

🚨 PROMISING news: The House just proposed DOUBLING DoD ALS research funding from $40M to $80M a year, the largest increase in history. This is community power in action. Make this funding a reality. Ask your elected officials to support research funding: bit.ly/ALSFY-27

Every ALS story matters. However you found the ALS movement, your experience can help raise awareness, build urgency, and keep pushing for progress towards a world without ALS. Share your story: bit.ly/story-26

The ASSIST Act would expand funding for vehicle adaptations that help Veterans maintain independence—like ramps, lifts, kneeling systems, and safer entry/exit modifications. It's a common-sense policy change that deserves support. Take action: bit.ly/ALSASSIST

June 21 is Global ALS/MND Awareness Day. Every day, ~384 people worldwide are diagnosed with ALS. 384 families facing ALS without options. We're building a world where every diagnosis comes with effective treatments—and ultimately, a cure. End ALS: bit.ly/ALS-next

Eric Dane wanted us to keep going! And that we will. We currently have 10 ACT for ALS cosponsors in the Senate. Ring those bells, let's get 90 more! Ask your Senators to cosponsor ACT for ALS today: bit.ly/fundALS

Who is I AM ALS? We're a patient-led community driving accelerated progress toward ending ALS. Since 2020, we've helped secure $1.6B+ in federal ALS research funding, including a record-breaking $313M this year alone. Join us and help build a world beyond ALS: bit.ly/ALS-next 💙

Today we honor Juneteenth—a celebration of freedom, resilience, and the pursuit of justice. As we work toward a world where everyone impacted by ALS has equitable access to care, support, and research, we recognize that progress requires all of us working together to build it. ❤️🖤💚 #Juneteenth

⚾📚 Continue celebrating Lou Gehrig Day with us! Join the I AM ALS Book Club on June 23 at 6 PM ET for a discussion with Jonathan Eig, author of Luckiest Man: The Life and Death of Lou Gehrig. Learn more about Lou's extraordinary life and enduring impact on the ALS movement. RSVP: bit.ly/Club626

The Senate HELP Committee passed ACT for ALS by a roll call vote of 22-0. This is a major legislative milestone. Next, on to the full Senate floor for a vote. The next steps are floor votes in both the Senate and House! Ask your legislators to vote FOR ACT for ALS: bit.ly/fundALS