Cynthia Johnson

@minetodo

Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009

409 Following1,535 Followers164 Posts

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Cynthia Johnson@minetodo· 6d

Severe ME Day - August 8, 2026 #SevereMEday #StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs Image by Cynthia Johnson (ME/CFS since 2009)

Reaching hand on a red and black background in honor of Severe ME Day (August 8, 2026). Image by Cynthia Johnson (ME/CFS since 2009)

Cynthia Johnson@minetodo· May 11

World M.E. Day - May 12, 2026 The #MillionsMissing from ME/CFS need better health care, up-to-date medical education and research funding now! I have suffered from ME/CFS since 2009. #StandByMEcfs #UnitedForME #StillSickStillFighting #pwME #EndMEcfs #MEcfs #myalgicencephalomyelitis #MEAction

A floral print chair with a red blanket folded on the top that says: #MEAction Still Here Still Sick.

Cynthia Johnson@minetodo· May 2

You are not forgotten I see your faces, I know your names, I remember your stories. #StandByMEcfs #StillSickStillFighting #MillionsMissing #UnitedForME #GlobalVoiceForME #EndMEcfs #MEcfs

Photo description: A hand with End ME/CFS blue bands on wrist. Photo credit: Cynthia Johnson (who has suffered from ME/CFS since 2009).

Cynthia Johnson@minetodo· Apr 7

A white pole that says May Peace Prevail on Earth in different languages surrounded by tall trees.

Cynthia Johnson@minetodo· Oct 13

Stand By ME/CFS! We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today! #StandByMEcfs #StillSickStillFighting #MEcfs #pwME #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono

Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!

Cynthia Johnson@minetodo· Jul 7

Happy Birthday, Ringo Starr! Peace and Love✌️💛 #StandByMEcfs

Photo of woman (Cynthia Johnson) wearing a jean jacket going across a crosswalk on a red mobility scooter. The back drop behind her is Abbey Road. #MEcfs since 2009 #StandByMEcfs

Cynthia Johnson@minetodo· Jun 25

Please give as you are able today! Help is so very greatly needed and appreciated. The sooner that I can raise the rest of the funds, the better for my complicated health issues. It will also allow me to devote more of my very limited energy towards ME/CFS advocacy. #StandByMEcfs #pwMEcfs since 2009

Scan code for "Financial Stability for Chronically-Ill Advocate" GoFundMe for Cynthia Johnson

Photo of woman with ME/CFS on red and black mobility scooter in front of sign: Third Annual Community Symposium on the Molecular Basis of ME/CFS, Saturday, September 7, 2019
(Photo of Cynthia Johnson taken by her son in 2019 at an Open Medicine Foundation event at Stanford. She has suffered from ME/CFS since 2009.)

Cynthia Johnson@minetodo· Jun 22

A photo of a white Peace Pole surrounded by tall evergreen trees. On the pole, "May Peace Prevail On Earth" is written in numerous languages. Photo by Cynthia Johnson.

Cynthia Johnson@minetodo· May 12

World ME Day - May 12, 2025 We need good health care, up-to-date medical education and immediate research funding! I have suffered from ME/CFS since 2009. #StandByMEcfs #StillSickStillFighting #MEcfs #EndMEcfs #MEAction #MillionsMissing #TeachMETreatME #pwME

Cynthia Johnson@minetodo· May 10

World ME Day May 12, 2025 I am sharing this artwork again today in honor of the #MillionsMissing who suffer from ME/CFS. As we come out of the shadows this week, we will band together globally to raise awareness, demand health equity and seek a path towards the cure! #StandByMEcfs #EndMEcfs

Red and white image with two shadows of people: one laying down and one standing. Image is in honor of World ME Day (May 12, 2025) and the people suffering from ME/CFS globally. (2021 #MillionsMissing image is by Cynthia Johnson who has suffered from ME/CFS since 2009)

Cynthia Johnson@minetodo· Apr 27

Please give to this GoFundMe as you are able today! 💛 With gratitude, Cynthia Johnson #StandByMEcfs #StillSickStillFighting #pwMEcfs www.gofundme.com/f/financial-...

Scan code for GoFundMe: Financial Stability for Chronically-Ill Advocate Cynthia Johnson. ME/CFS since 2009

Cynthia Johnson@minetodo· Apr 7

Stand By ME/CFS! We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today! #StandByMEcfs #StillSickStillFighting #MEcfs #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono

Cynthia Johnson@minetodo· Apr 4

Not Hard to Understand Start from this point: We all want to get better. It’s not hard to understand: We all want to get better. Just to be very clear: We all want to get better. Proceed accordingly. It’s not hard to understand. Words/Image ©Cynthia Johnson (ME/CFS since 2009) #StandByMEcfs

The image is the shadow of a woman looking out a window. © Image is by Cynthia Johnson (who has suffered from ME/CFS since 2009)

Cynthia Johnson@minetodo· Jan 24

Stand By ME/CFS! We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today! #StandByMEcfs #StillSickStillFighting #MEcfs #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono

Cynthia Johnson@minetodo· Jan 1

May Peace Prevail On Earth

Cynthia Johnson@minetodo· Dec 29

In memory of former President Jimmy Carter...

Cynthia Johnson@minetodo· Dec 21

Want to give a holiday shout out to all who also suffer from ME/CFS and the people that love us! To learn more: MEAction Network (meaction.net), Bateman Horne Center (batemanhornecenter.org), Open Medicine Foundation (omf.ngo) and Solve M.E (solvecfs.org). #StandByMEcfs #TeachMETreatME

Cynthia Johnson@minetodo· Nov 22

I support funding for the NIH ME/CFS Research Roadmap! The millions who suffer globally deserve 2024 emergency funding after decades of neglect. The extreme human cost of ME/CFS cannot be put into words. #StandByMEcfs #StillSickStillFighting #EndMEcfs www.ninds.nih.gov/about-ninds/...

Millions Missing photo by Cynthia Johnson (ME/CFS since 2009) #StandByMEcfs

Cynthia Johnson@minetodo· Nov 20

Stand By ME/CFS! We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice! #StandByMEcfs #StillSickStillFighting #MEcfs #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono