We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective

Something out of the ordinary... We know something We can't explain, not yet.... Tuesday.... #SEDSConnective #Hypermobility #Neurodivergence

Something out of the ordinary is coming … Tuesday .. #sedsconnective #hypermobility #neurodivergence

Are you hypermobile , flexible or have chronic pain? NO formal diagnosis needed Email researcher Shy (Shyamalie Satkunanandan), ss06276@surrey.ac.uk, for info or to take part

🎉 8 years of SEDSConnective! Thank you to everyone who has been part of the journey. Our Trustees, volunteers, members, supporters and patrons, you are the heart of it all. Here is to 8 more. You are not alone! #Hypermobility #Neurodivergence #SEDSConnective

We are delighted that SEDSConnective has joined as a member of the NCD Alliance Network @ncdalliance #sedsconnective #health

You're not alone www.sedsconnective.org #Hypermobility #Neurodivergence #sedsconnective

Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or https://forms.cloud.microsoft/e/cMwK66WNhf

July 11th 2025 Anniversary of the rsom invisible impact of covid19 symptoms on hypermobility and neurodivergence Thanks to our chair Jane Green MBE planning organising and giving our volunteers the chance to shine at the event and

For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective

Some of the amazing SEDSConnective stands we've hosted, covering topics such as Autism, ADHD, Musculoskeletal events, therapies and interventions in physical health, sleep, diet, education and peer to peer support. Thank you to our amazing volunteers! www.sedsconnective.org

The ‘BEOND’ survey is now open! The survey will run for the next 20 years. Families are welcome to take part every couple of years to see how their answers have changed with time. 👉 https://www.cerebranetwork.com/beond

Volunteer Facilitators Wanted – Join Our Team! We'd love to hear from you! We are looking for Volunteer Facilitators who can support our charity by helping to host online webinar sessions at regular times throughout the month. Please email recruitment@sedsconnective.org if you're interested 🙏

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective. 👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A

✳️Do you have a formal dx of Autism/ADHD ? ✳️A formal dx of hEDS, HSD (GJH) OR ✳️Told it is likely you have hypermobility by a professional health medical practitioner? ✳️In mainstream education secondary school for at least 1 year? ✳️No learning disability ✳️18-25 of age now ⬇️links in comments

📢PhD research. We are delighted to say 😃 the parent/carer part is completed. Now only looking for a few more young adults aged 18-25 Can you help? Are you Autistic or ADHD and formally diagnosed? Scan QR code Email l.r.tostevin@surrey.ac.uk

Heat-induced neurological dysregulation When it's really hot, your body and brain are working harder just to keep your temperature stable (homeostasis) which means less capacity for everything else It's what happens when your whole system is running hot, literally Name it. Heat rage is real!

New research out & it matters. “Beyond bendy joints: number of variant connective tissue features predicts neurodivergent characteristics in hypermobile individuals with anxiety” 👉 www.nature.com/articles/s44... @bendybrain.bsky.social @lisaquadt.bsky.social #BSMS #ArthritisUK #MQ

We’re proud to be a small charity making a big difference in our community 📢 Every day we support people with hypermobility, neurodivergence and more. Every donation helps and every hour of support we can provide matters - https://www.sedsconnective.org/donation #SmallCharityWeek

The new EHRC guidance has sparked controversy. Advocates continue to call for intersectional human rights that protect all marginalised communities. This is why Pride still matters in 2026. #Pride2026

#NeurodivergencePrideDay June 18th. For everyone who spent years being told you were too sensitive, too frail, too clumsy, too much and found out later your body and brain were working harder than anyone knew. Together. Always together. #DisabilityPride #Hypermobility #ND

#MensHealth TheySED it's not possible.... WeSED " No one should feel alone or misunderstood in their experience" Connor #Hypermobility #Neurodivergence www.sedsconnective.org

#MensHealth TheySED it's not possible.... WeSED " No one should feel alone or misunderstood in their experience" Connor #Hypermobility #Neurodivergence www.sedsconnective.org

ADHD and hypermobility Sunday 14th 5pm to 7pm Recordings available on ticket- www.eventbrite.co.uk/e/the-connec... with Jane Green MBE chair/founder of SEDSConnective and with SEEDtalks @jgjanegreenmbe.bsky.social

The Connection Between Hypermobility & ADHD with Jane Green MBE When: Sunday 14th June 2026 Time: 5pm GMT+1 Online #EDS #Dysautonomia #mcas #neurodivergence Click here for tickets: bit.ly/4dICEuY

Our next monthly support meeting - Tue 16th Jun 10-11:30am at The Brickworks, RH15 9LH. You do not need a ticket or a diagnosis to join us! Parents, carers and friends all welcome to join. 👉 https://www.sedsconnective.org/event-details/support-meeting-in-burgess-hill-2026-06-16-10-00

Who cares for the carers? Do you feel doubly jeopardised, caring for someone while also managing your own disability, chronic illness, neurodivergence, hypermobility, mental health, employment? Too often carers are expected to keep going regardless of the impact #CarersWeek @carers-week.bsky.social

Tourette’s Syndrome (TS) TS is a neurological condition, not a behavioural choice #TouretteAwarenessDay #Tourettes #Tics #Neurodivergence

Its #VolunteersWeek ⭐ Here is what just some of our male volunteers say about volunteering at SEDSConnective! Thank you to all of our volunteers for everything you do!

Lipoedema Starts usually in puberty - but NOT ALWAYS !!! Fat cannot be lost through diet & often leads to stigma Spectrum of hEDS, loose connective tissue disorder 🦓 Often people with lipoedema may have anxiety/depression and ADHD or other neurodivergence ♾️ #LipoedemaAwareness month