“It is heartbreaking realising that I am no longer able to remember what it is not to be in pain… I do sometimes have great moments, beautiful days even. But still, I am in pain.” Life With A #ChronicIllness https://buff.ly/3OuV81W @serenebutterfly.bsky.social #ChronicPain

“You may not control all the events that happen to you, but you can decide not to be reduced by them.” ~ Maya Angelou #chronicillness #chronicpain #mentalhealth #disabilities

“We never know what someone is going through just by looking at them—and we certainly have no idea what patients are going through. ‘Sick’ doesn’t have a look… Many of us are stronger than you’ll ever understand.” https://t.co/oiznhmki4f @CarrieKellenberger.bsky #ChronicIllness

“Know your own value and worth. Give over to hope (even just a tiny bit) and let light shine through the cracks on the hardest days. Let yourself trust that joy—big & small—can find you again.” The Right Words at the Right Time https://buff.ly/3R2pDOP @painintheBECK.bsky #ChronicIllness #ChronicPain

“Why should you feel guilt for using the things you need to help you live? You didn’t ask for your body to just stop working…I never thought at this age I would have a body of someone decades older.” When Little Things Become Struggles https://buff.ly/3pEhxQy #ChronicIllness #ChronicPain #Disability

“When people allow you to know about their pain and talk about it, take your shoes off. It’s a holy place. Be humble, be kind when someone shows you vulnerability.” - Amani Albair #ChronicIllness #Quotes to Inspire, Motivate, Grieve, Hope & Laugh by @AChVoice.bsky.social https://buff.ly/fp7dYT0

“It isn’t weakness to need to take care of my health… It’s OK to grieve for what I’m missing out on…the life I had before… But mostly, it’s OK to just be…I don’t have to be Superwoman or a poster child for strength.” https://buff.ly/FLlSzTL #ChronicIllness #ChronicPain #DisabilitySky

“When we experience a health setback—which sometimes is a new state of being—we have to adjust our coping…it can be extremely emotionally and mentally taxing. I am in this state now…taking care of #mentalhealth during these times is extremely important.” https://buff.ly/HEUnfwq #ChronicPain #Spoonie

“Most people start the day with possibilities, and energy to do whatever they desire, especially young people… Every little thing I do as a person with #chronicillness(es) and #chronicpain requires energy (especially because #fatigue is a symptom).” https://buff.ly/3VeuDEP

“‘Why is she parked in a #disability spot? She looks fine… She’s too young.’ Most of the public is uneducated on how #pain and disease affect young people too. We're not faking an illness to get a close parking spot. We would much rather be able to walk.” https://buff.ly/jy5uG1z #ChronicPain

“For those of us living with #ChronicPain or illness, this pressure can feel even heavier. Our bodies don’t work the way we’d like…yet the expectations around us don’t disappear… Some days, simply getting through is an achievement in itself.” https://buff.ly/w2Lcgkd @DespitePain.bsky #DisabilitySky

“People who may not understand #chronicillness and #chronicpain may see you do something and think, you should be able to do it again, everyday… Don’t let other people’s assumptions weigh you down and most importantly steal your joy.” https://buff.ly/ih0qskT @CRPS_Warrior #CRPS #InvisibleIllness

“I’ve lost track of the number of times in my life that I’ve wanted to give up. The number of days, of moments, when I felt I could no longer tolerate the #pain… But I’m STILL here… Just like you can’t see my illness, you can’t see my strength.” https://buff.ly/2Q9W4vQ #spoonie

“There is often a huge sense of loss [with] #chronicillness… the loss of a career, loss of friends or social life. But the biggest loss is often who [we] once were. Many people no longer feel that they’re the same person. They grieve for that person.” https://buff.ly/kUOZ9CG #ChronicPain #Disability

“Sound, vibration, even a breeze can send our pain levels soaring. This is so hard to convey to healthy people, who have a tendency to think that it can’t be that bad—but it is. CRPS’ perplexing symptoms and pain are incredibly real to us.” https://buff.ly/pNO6lzb #CRPS #McGillPainIndex #PainScale

“It can be even harder when you live with more than one type of #ChronicPain, or when #ChronicIllness adds extra layers to the struggle. Just when one part of your body starts to calm down a little, somewhere else flares up.” buff.ly/MGfPSsS @despitepain.bsky #Disabilities #InvisibleIllness

“You can’t assume I am not in pain by judging me… We become masters of appearing normal, of faking being well, so when I reach out for help—please realize this simple act says more than any number on a scale could ever say.” https://buff.ly/cmkKtgV #disability #invisibleillness #chronicpain

“Healthy people don’t understand that #chronicillness and pain is not linear…the consequences don’t match the actions. We have no idea if what we choose to do now will mean that we can’t move tomorrow.” https://invisibleillnessbattle.wordpress.com/2015/04/18/no-one-talks-about-the-fear/ #chronicpain

“Since becoming #chronicallyill, books have become even more crucial. Books have become a magical portal allowing me to escape the severe, debilitating symptoms that are now my constant reality.” https://buff.ly/QBFl4Gf @serenebutterfly #chronicpain #booklovers

“With our #chronicillness we are enough. With limitations we are still enough. We have to do things differently and maybe we cannot have the same goals… but we can have #goals… and achievements. We are good enough inside, intrinsically, as a person.” https://substack.com/home/post/p-157342409

“For those of us living with #ChronicPain or illness, the pressure can feel even heavier. Our bodies don’t work the way we’d like…yet the expectations around us don’t disappear… Some days, simply getting through is an achievement in itself.” https://buff.ly/w2Lcgkd @despitepain.bsky.social

“There is a reason why you only see me on good days; because I only let you see me on such days. My worst days instead spent behind closed doors… where no one can see my tears when the pain is more than I can bear.” buff.ly/3y8Osod @serenebutterfly.bsky.social #FND #ChronicIllness #ChronicPain

“Often the best thing a person can do is to acknowledge that it’s impossible to comprehend, but validate the existence of the pain. Then, find ways to help make the sufferer’s life a little bit easier.” https://achronicvoice.com/pain-flare-triggers/ @AChVoice.bsky.social #chronicillness #chronicpain

“But the saddest part about it is that no one even knows they existed, although they mean so much to you. In their heads it’s just “she’s not into such activities”, yet if you could, you would be a star.” https://buff.ly/3WNQ9AV @achronicvoice.com

“Courage does not always roar. Sometimes courage is the quiet voice at the end of the day saying, 'I will try again tomorrow.” ~ Mary Anne Radmacher How to Cope with Setbacks & Flare-Ups of #ChronicPain & Illness—With Tools to Help You Through https://buff.ly/15ufQNR%20 #ChronicIllness

“The next day…my back’s killing me…my feet hate me for even touching the ground a little. Both rotator cuffs…screaming… Officially in #fibro flare zone… When you’re flaring, your brain is like pudding… Everything shuts down…and forces you to rest.” https://buff.ly/2rbq1pr #Fibromyalgia #ChronicPain

“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain https://buff.ly/aypGMQ1

“If you handle it well, they tend to forget that you’re handling it at all… doesn’t mean that I’m okay… I still have to deal with my illnesses [&] handle everything… I still have way too many medical appointments and way too much pain.” https://buff.ly/4eCu91w #ChronicIllness #ChronicPain

“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #ChronicPain unless you have it, and understanding what it’s like… dramatically affects how you treat someone who lives with it.” https://buff.ly/ZVh1ubc @kmitchellauthor.bsky #ChronicIllness

“It happened without warning. One day I was pretty fine, the next I was thrust into my healthcare system trying to work out what was wrong… Advocating for yourself isn't always an easy thing to do. It can be hard, and nerve-wracking.” https://buff.ly/Iccmiia #ChronicIllness #ChronicPain