Mads

@blueforpwme

🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄‍♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋

325 Siguiendo218 Seguidores614 Publicaciones

Bluesky

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Mads@blueforpwme· 10d

#SevereMEDay 25% group People seem to think M.E. is this mild, ineffectual disease. It is not. It’s a severely life affecting, life limiting, life changing neurological, neuro-immune disease of the brain and spinal cord. In turn, a multi-system issue (lack of oxygen to tissues, perfusion etc)….

Bold white text in capital letters reads: SEVERE M.E. DAY and underneath reads the date: 08.08.2026 set against a gradient blue background from dark to light top to bottom.

Mads@blueforpwme· Jul 19

Support wild life where you can! #ClimateEmergency

Mads@blueforpwme· Jun 19

The crescent of the moon and star in June … a pale blue sky, and darker rash like clouds above it, and below the silhouette of trees.

Mads@blueforpwme· Jun 5

And I wear a mask

A white woman in an aura respirator mask wearing a blue cardigan white top and hair in a bun. She wears glasses and is set against a backdrop where a large window looks out onto a green field with the sea in the background. The sky is blue with white and grey clouds.

Mads@blueforpwme· Jun 5

A HEPA filter will run throughout the session which is turned down for the body scan.

A cut out image of a blast air mini HEPA filter set against a blue sky and white clouds. Text on a bubble background reads: Blast Air Mini. There’s a device for recording readings for levels of co2, particulate matter, temp, humidity sits on top of the filter in the picture.

Mads@blueforpwme· Jun 5

#pwME and #LongCovid & anyone where making it there is enough, can just turn up to lie down with others, take in the beautiful view and feel supported 💙 the mats are thick and comfortable and you can bring blankets, socks, eye mask etc… I’d love to see you there 💙 #NationalTrust #SouthTyneside

A photograph of a room with large windows looking out onto the Leas at Whitburn, with Souter lighthouse to the left. There are green fields and a path leading down to the cliff paths and the sea is visible.

A large window looks out onto a green field and sea. A blue sky with white and grey clouds take up the top half of the photograph. In the foreground there’s a blue mat and cloud cushion.

A room with blue mats laid out as we view from the perspective at eye level if kneeling up. In the distance a large window looks out onto a cloud filled sky where the sea is also visible.

Mads@blueforpwme· Jun 5

Just 3 sessions left for the summer season of #CloudShrine Take a moment to #Connect with others in the #community where we #Support each other, to feel nourished. For those in #Sunderland #SouthShields #Whitburn These introductory sessions are just £3 which includes parking Book below ⬇️⬇️⬇️⬇️

Mads@blueforpwme· May 6

A gentle reminder… I’d love to see even just one fellow #pwME at my session… so for those that can leave the house sometimes here’s a gentle reminder for those in the #Sunderland #Whitburn and #SouthTyneside areas of the NE ALL WELCOME! #CloudShrine #Sanctuary #Connection #Community #HEPA #PASC

Mads@blueforpwme· May 1

M.E. #MyalgicEncephalomyelitis One of the loneliest and most abandoned diseases on the planet that no one wants to know about. Share to support #pwME and our amazing, tenacious, beautiful, intelligent, and creative #community #MEawareness #MEawarenessMonth

White text in capitals on a blue background reads:
M.E. One of the loneliest and most abandoned diseases on the planet that no one wants to know about.
Underneath a hashtag reads: MEawarenessmonth

Mads@blueforpwme· Apr 28

A gentle reminder for my next session,for those in #Sunderland well enough to attend £3 -all dates up until September now available to view, for those who have the luxury of being able to attend most things they pre-arrange in their calendars! #Souter #pwME www.nationaltrust.org.uk/visit/north-...

A photo of the activity room at Whitburn Coastal Conservation Centre where a grey smooth floor has thick blue mats laid out. There is a large window where an expanse of sky cloud and sea can be seen. On the floor next to the mats in the foreground sits a cloud shaped cushion. There’s also a bolster shaped blanket on the mat near the window.

Mads@blueforpwme· Apr 15

"Hi, I’m Madeleine. I’m living with M.E. (MyalgicEncephalomyelitis - post-viral), Fibromyalgia, and symptoms of Long Covid. Since the end of 2008 I’ve been unable to join full classes without suffering the brutal consequences of PEM/PENE (Post Exertional Neuro-Immune Exhaustion)…

Mads@blueforpwme· Feb 10

The skies have been grey for a while here, but I’m remembering these beautiful blues… light and shade, the dark to appreciate the light 🌟sending love to the blue sky community 💙 ☁️💙

A photograph of blue sky with clouds of various sizes sit against a blue sky, from lighter at the bottom to a darker blue towards the top of the photo. The lower clouds tinged slightly with grey, some voluminous some rash like

Mads@blueforpwme· Jan 7

Or join me here where I talk a lot more about what sessions involve:

The image shows a blue and white QR code with the words below showing an Instagram tag: @clpud.shrine

Mads@blueforpwme· Dec 18

I’d say that’s pretty much a given then …. Currently at 93%

A poll result showing 93% currently in favour of air filtration in schools, from the Belfast Telegraph

Mads@blueforpwme· Nov 24

‘Support for people living with ME is international & has deep roots, so we are not short on knowledge. Thanks to every one of you who has shared, promoted & donated. We would not be doing this without you, & thanks to you we continue to the next stage - under less pressure of time’

Mads@blueforpwme· Nov 7

#CloudShrine Update: Our first meeting went well, despite two attendees off sick. I’m meeting in person towards the end of this month, visiting the space & to try out one of the mats, and to determine next steps. Meanwhile marketing will be working on spreading the word across #SouthTyneside

An image showing a floating cloud with closed eyes drawn on as two small curves. It’s sits against a pale blue sky with white clouds behind. There is text above the floating cloud that reads: CLOUD SHRINE

Mads@blueforpwme· Nov 1

#Whitburn #ConservationCentre

Mads@blueforpwme· Nov 1

I’m finally meeting National Trust via a teams call on Monday to discuss my Cloud.Shrine proposal The 1st step will be to garner interest & ability of #pwME / #LongCovid & any other energy limiting disease to attend. It’s focused towards those with PEM primarily. It will be a #HEPA filtered space ☁️

An image of a floating white cloud against a pale blue background with light clouds behind. The cloud has closed eyes projecting contentment and relaxation. There is text above the cloud that reads: CLOUD SHRINE & text below the cloud that reads: FIND YOUR CLOUD. YOUR SHRINE. YOUR TIME.

Mads@blueforpwme· Sep 1

It’s so emotional seeing all these donations and messages, giving me so much hope, knowing how many of us are out there and supporting each other from afar. Maybe when we’re all gone from this world we might all meet in heaven for those long overdue hugs and love ❤️

An image of a person with M.E. (MyalgicEncephalomyelitis) sat in bed against a backdrop of rolling hills and countryside, painted as an oil painting style, they wear a long sleeve blue top and furry bonnet, propped with cushions behind. There is text above and below which reads: Join the legal campaign JUSTICE FOR M.E.

Mads@blueforpwme· Aug 31

Link to donate for LEGAL ACTION : #pwME - Currently at £4754 11:15 31/08/2025 crowdjustice.com/case/justice... #Justice #JusticeForME #MyalgicEncephalomyelitis PLEASE SHARE IF YOU CARE! (If you haven’t already) Thank you 💙

Mads@blueforpwme· Jul 18

July 19, 2025 is the deadline for heads of state of the 192 of the 196 nations that are parties to the International Health Regulation to reject the 2024 amendments. #IHR youtu.be/VO8HVTSGLTI?...

Mads@blueforpwme· May 9

These items of clothing represent those of us unable to participate fully in life: in the clothes, with the identity, & sadly without proper representation in society… be that achieved through media, tv, healthcare or national campaigns, as we see others represented with chronic diseases #pwME #SOS

Mads@blueforpwme· May 9

#JustOneWish - to be able to wear the clothes again that make us feel like who we really are. For some of us this is vital to our identity which we lose most of when we become missing from life. #pwME #MyalgicEncephalomyelitis #MEAwarenessMonth

Mads@blueforpwme· May 9

@thriftvip & @thrift_stop_pop_shop are going #BlueForME this year, on instagram, sharing a selection of blue 🦋 items of apparel available to purchase, with a percentage of those sales going towards M.E. research. I’m keeping my campaign there as it’s too much to do here too 🩵🦋🩵🦋🩵🦋🩵🦋🩵🦋🩵🦋

Mads@blueforpwme· Apr 16

I’m currently working on putting together a proposal atm so a bit quiet on here … progress is slow but currently steady with lots of resting in between. 🩵 I’m also preparing a few bits for #MEAwareness in May 🦋 … love and waves to all 🌊🌊🌊

Mads@blueforpwme· Mar 24

Finally, after 3 long years of new and worsening symptoms following #SARSCOV2 infections I got an ECG… …. Then I got a letter to say my referral to a #LongCovid clinic is cancelled as there aren’t any WTF? We’re STILL IN A PANDEMIC 😷 IDIOTIC MOVE @emmalewellbuck.bsky.social #PublicHealth

Mads@blueforpwme· Mar 15

LOVE AND SOLIDARITY TO THOSE MISSING FROM LIFE AS WE LIVE MOST OF OUR LIVES ONLINE … 🩵

Mads@blueforpwme· Mar 14

Just a little bird sending some L🩵Ve to you…. Xx

An edited illustration from of a blue bird, it’s feathers in various tones of blue, on a pale beige coloured background. The bird sits atop a white wooden post

Mads@blueforpwme· Mar 6

Just emailed MP @emmalewellbuck.bsky.social with my story as a #pwME to highlight why it’s so important to #ReportNonPharmaHarms I hope #WesStreeting can make the change we all need to see by making a fair & balanced reporting system @mefoggydog.bsky.social #ShakeItUp #PatientSafetyUK #NHS

Graphic in red white and blue with MEFoggyDog Campaign with SHAKE IT UP in large white letters with a heart and monitor zig zag line and the hashtags for the campaign and also reading: we need to shake up the status quo to create positive change in blue and in red text below that: we need a new system to report harms from non-pharmaceutical‘treatments’

Mads@blueforpwme· Mar 5

#ShakeItUp - with thanks to @mefoggydog.bsky.social for her work on this 🩵 #BePartOfChange This is paperwork I’ve kept from 17 years ago when I was harmed by following GET on NHS - I trusted & beleieved them Full story with text on my instagram page @madeleinethriftvip #GET #CBT #ReportTheHarm