Carrie - MySeveralWorlds - Artist, Author, Advocate
@carriekellenberger
✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS 🦋 MySeveralWorlds.com 👩🦼 #DisabilityAdvocate 🤝 Team Fibro & Spondylitis 🎨 DISABLED ARTIST 🌴
You bet I got to try a robotic #exoskeleton - way before the Paris Olympics too! I tried #Keeogo in Taipei at CTOT in Taipei. For the first time in 17 years, I jogged, squatted & climbed stairs with no effort at all. #DisabilityPrideMonth #MySeveralWorlds #DisabilityInclusion #KeepOnGoing
If you minimize a person/make them feel bad for talking about their illness or claim that's all they talk about, they'll never forget it moving forward. Think about about how much it takes to open up before you shame someone. Carrie, MySeveralWorlds.com #DisabilityPrideMonth #MySeveralWorlds
"Why actual disabled people need to be consulted when designing for accessibility" Photo and text by @misaonwheels.bsky.social The image features a very steep ramp with no guardrails in the center of stairs. #DisabilityPrideMonth #DisabilityInclusion #MySeveralWorlds
I'm Disabled. I don't owe you an apology for: *My access needs *My lived experience *Self-advocating *Asking for adjustments *Needing rest *Communicating differently *Saying no *Taking up space *Setting boundaries *Existing unapologetically Disabled By Society #DisabilityPrideMonth #MySeveralWorlds
Two people can have the same chronic illness and experience it in totally different ways. Credit: @natashalipman @thisthingtheycallrecovery #DisabilityPrideMonth #DisabilityAwareness #MySeveralWorlds #DisabilityInclusion #DisabilityPride
Travelling light is a privilege many Disabled people don't have. It isn't high maintenance to need more to function. Abled Person Clothes Toiletries Tech Admin Disabled Person Meds Support pillow Clothes Heat/ice packs Braces Med supplies Aids Safe food #DisabilityPrideMonth #MySeveralWorlds
"When you become disabled & unable to work, you mourn independence. Most disabled people want to work. They don't want to beg for meagre handouts that keep them in legislated poverty. They don't want to be sick. Better social supports are needed." @broadwaybabyto.bsky.social #DisabilityPrideMonth
I asked for a caseworker to help me in Feb. By June I was holding 12 points of care by myself across GP, rheum, iron and B12 infusions, crisis counselling, PT, therapy, among other things. It is too damn much to handle while being so sick. #DisabilityPrideMonth #DisabilityInclusion #MySeveralWorlds
INSIDE OF THE MIND OF SOMEONE WITH A CHRONIC ILLNESS *How much longer can I put up with these treatments? *How long will this pain last? *Is this too much for the people I love? *Do they believe me? @chronicloveclub.bsky.social #MySeveralWorlds #TheDisabilityGap #ChronicTruths
"I think #DisabilityJustice would be easier if abled people understood that being disabled is a mixture of all three of 1. I can't do that without negative consequences. 2. I can't do that unless I have support for it. 3. I can't do that." visorforavisor #DisabilityPrideMonth #DisabilityInclusion
#Repatriaton After returning to Canada I had to rebuild more than healthcare. I had to learn how Canadian systems worked & who could help. It surprised me that many people helped carry it. 🔗 www.myseveralworlds.com/2026/06/25/r... #TheDisabilityGap #MySeveralWorlds #RebuildingMyLife #PatientAdvocacy
This #DisabilityPrideMonth, I want people to understand that disabled women are often judged for what others can see while the most dangerous parts of our lives remain invisible. The damage caused by being shamed for surviving in a sick body never leaves. #DisabilityAwareness
"I'm not a weeper. I live with incredible pain every day. I go through unthinkable situations that should break me. They don't. Today, I cried. I'm frightened of the DWP and what they have the power to do to me. They destroyed me last time." @ChasingGlimmers #MySeveralWorlds #DisabilityPrideMonth
JULY IS #DisabilityPrideMonth #LifeWithoutBarriers " #Accessibility is being able to get into the building. Diversity is getting invited to the table. Inclusion is having a voice at the table. Belonging is having your voice heard at the table!" Credit Unknown #MySeveralWorlds #DisabilityInclusion
New doc: You're articulate about your condition. Me: Communicating with docs who treat me as an unreliable witness to my own condition is a second language. It's hard to feign ignorance to protect an ego so big it could get me killed. @jakesidwell.bsky.social #MySeveralWorlds #ChronicTruths
EHLERS DANLOS Headaches Shoulder Impingement Tennis Elbow Arthritic Knees Achilles Tendon Heel, jaw, chest, back, hip neck pain Frozen Shoulder Golfers Elbow R.S.I. Carpal Tunnel Groin strain Thigh Strain Knee Pain Collapsed Arches #EhlersDanlosSyndrome #hEDS #EDSAwareness #MySeveralWorlds
"My favorite part of chronic illness is waking up every day, feeling like absolute shit, mustering every ounce of strength from deep within my soul just to get out of bed, and then being expected to act like a fully functional and capable human being." Credit Unknown #ChronicTruths #MySeveralWorlds
CRANIOCERVICAL INSTABILITY Skull Brain NEED...OXYGEN WATCH OUT! Nerve AH! PAIN!! I CAN'T HOLD ON... I DON'T FEEL GOOD.... Vein I CAN'T GET ENOUGH BLOOD UP THERE! OUCH! RUB HELP! WHAT'S GOING ON? Spinal fluid Brainstem and spinal cord Artery Via Chronically Doodling #CCI #EDS #MySeveralWorlds
👉 I sure understand this sentiment! I went through 10 immunosuppressant treatments (biologics, low dose chemo and JAKi) in five years. All of them failed except one. ~Carrie #MySeveralWorlds #AxSpA #PsA #ArthritisAwareness #InflammatoryArthritis
"Chronic pain IS its own trauma. To understand how #ChroninPain impacts a human, you NEED to understand how the nervous system responds to ongoing, inescapable stress. Managing pain & trauma have to go hand in hand to manage EITHER." Credit: @drdoylesays.bsky.social #Trauma #PainAwareness #Stress
#FibromyalgiaAwareness Here's a word cloud for #fibromyalgia: pain, brain inflammation, sleep probs, IBS, allergies, skin & scalp pain, fatigue, migraine, paresthesia, depression, hope... What words resonate with you? Read my story: 🔗 www.myseveralworlds.com/fibromyalgia/
"The sicker you get, the more expensive life becomes. the more expensive life becomes, the harder it is to rest. and that's how you stay sick." Credit @chronic.resources #MySeveralWorlds #ChronicTruths #LifeWithIllness
"A big part of #ableism is the inability to understand that being able to do something occasionally with great effort doesn't equal being able to it for 40 hrs/week." Credit: laylamessner #MySeveralWorlds #DisabilityAwareness #MyChronicLife
"Never underestimate the grief that comes when chronic illness or disability is diagnosed. Especially when...the person is given a diagnosis and left to process this and move forward with little guidance or empathy. Via: A Cup Full of Spoons #MyChronicLife #ChronicTruths #MySeveralWorlds
It's just an IUD fitting. It's just period pain It's just a heavy period It's just an early miscarriage It's just morning sickness It's just pregnancy It's just early labour It's just your age It's just one of those things It's just menopause It's Not Just @KateBurke #MySeveralWorlds #WomensHealth
Patients: Refusing to take opioids after major surgery or trauma doesn't make you a hero Providers: Denying opioids to a patient begging for relief doesn't make you a hero Pain relief isn't a moral test. It's basic, humane care. Credit: Bev Schechtmani #MySeveralWorlds #DontPunishPain #PainRelief
A person with #Chroniclllness fell in a hole... Doctor: Keep a symptom diary Benefits assessor: Provide evidence! Family member: You look fine. Another chronically ill person: I know this hole. We'll rest when you need to. Credit Unknown #ChronicTruths #LifeWithIllness #MySeveralWorlds
An oldie but a goodie! ME EXPLAINING MY MEDICAL HISTORY TO A NEW DOCTOR. Credit: Fibromyalgia Memes #MySeveralWorlds #FibroNerds #TeamFibro #SupportFibro
"First you're too functional for medical professionals to take you seriously. Then you're too sick and too complex to get medical care. Cursed Goldilocks syndrome." Credit: Himmat @himmatb15 #ChronicTruths #MySeveralWorlds #MyMedicalDrama
OMG the accuracy! 😂 "EDS joints be like: "I'm so loose I need to be taped back together." EDS skin be like: "I will violently react if you put tape on me." Credit Unknown #EhlersDanlosAwareness #MySeveralWorlds Follow for more #ChronicIllnessAwareness info! I post content three times a day.