CreakyJoints®
@creakyjoints
Community of people living with arthritis & rheumatic disease. EST 1999.
No one should have to prove their disability to deserve kindness, inclusion, or access. A little empathy can remove barriers that medicine never could. 💜 #DisabilityAwareness #Accessibility #ChronicIllness
👀 Whether it's a specific eye drop, a lifestyle tweak, a specialist who finally got it right, or just a coping strategy for the hard days, we want to know: What works best for YOU in managing TED? Share below — your answer might be exactly what someone else needs to hear today. #ThyroidEyeDisease
Support shouldn't begin at a crisis. Everyone deserves to be believed, respected, and have access to timely care, accommodations, and accessibility—before reaching their breaking point. 💜 #DisabilityPrideMonth #ChronicIllness #PatientVoice #Accessibility
Heat, humidity, wildfire smoke, and even some RA medications can all affect how you feel. Staying hydrated, protecting your skin from the sun, checking air quality, and planning around the hottest hours can help you stay safer and more comfortable. #RheumatoidArthritis #Arthritis
For many people living with chronic illness or a disability, canceling plans isn't about not wanting to go—it's about recognizing when their body needs something different. Canceling plans isn't selfish. #DisabilityPrideMonth
For many people living with disabilities and chronic illnesses, rest is part of managing their health—not a luxury. This Disability Pride Month, let's stop treating rest like a reward and start recognizing it as a legitimate medical need. #DisabilityPrideMonth #ChronicIllness #DisabilityPride
No one should have to prove they're "disabled enough" to be believed or accommodated. This Disability Pride Month, let's choose empathy over assumptions. 💜 #DisabilityPrideMonth #InvisibleDisability #ChronicIllness
Today is #ChronicDiseaseAwarenessDay. Living with a chronic disease is about so much more than managing symptoms. It’s navigating daily life with resilience while facing challenges that often go unseen. Every story deserves to be seen, heard, and believed. 💜 #ChronicDiseaseAwarenessDay
🇺🇸 We're reflecting on what independence means for people living with chronic illness. For many, it means finding the right treatment, being heard by your care team, advocating for your health, or simply having a day where symptoms don't stand in the way. Happy Independence Day. ❤️🤍💙 #IndependenceDay
This is the symptom nobody talks about — but so many people with HS experience. The odor linked to HS comes from drainage and inflammation. It is not a hygiene issue. You deserve answers and proper care. Learn more 👉 ghlf.org/hscheck/?utm... #HSAwareness #HidradenitisSuppurativa
HS doesn't just affect you during flares. The scars, discoloration, and skin tightness it leaves behind can last long after the inflammation fades. If your skin has changed in ways you can't explain, it's worth checking. 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa
For many people living with chronic illness, those words don't feel reassuring—they feel dismissive. Not every symptom can be seen. Pain. Fatigue. Brain fog. Flare-ups. Invisible illness is still illness. Believe people when they tell you what they're experiencing. #ChronicIllness
Did you know? 🤔 Graves’ disease affects more than just your thyroid. Because thyroid hormones influence nearly every system in the body, Graves’ can impact your energy, heart rate, mood, sleep, and overall well-being. Learn more: creakyjoints.org/education/wh... #GravesDisease #ThyroidHealth
It's #HSAwarenessWeek. 💜 Painful, recurring lumps or boils under the skin may be more than "just a skin problem." Our free, anonymous HS Symptom Check can help you better understand your symptoms and prepare for a conversation with your healthcare provider. 🔗 ghlf.org/hscheck/
HS pain isn't just uncomfortable — it's disabling. From mild sensitivity to severe, daily discomfort, pain is one of the most impactful symptoms of Hidradenitis Suppurativa. Don't dismiss what your body is telling you. See if you could be at risk 👉 ghlf.org/hscheck/?utm... #HSAwarenessWeek
But arthritis doesn't end tomorrow. To everyone living with arthritis: You do not need to earn rest. You are allowed to set boundaries, ask for help, protect your energy, and put your health first. See you tomorrow. We'll still be here. 💜 #ArthritisAwarenessMonth
“Your labs look normal.” For many people living with Graves’ disease, that doesn’t always mean the symptoms disappear. Learn tips for navigating life with Graves’ disease: creakyjoints.org/GravesDiseaseWellness
Gout symptoms can come and go, making it easy to put care off. Genene shares why getting checked early and following up with your doctor matters. Hear more patient experiences: creakyjoints.org/thegoutshow/ #Gout #GoutAwarenessDay #Healthcare
Managing gout isn’t always as simple as “just take your medication.” Life gets busy. Appointments get pushed off. Questions come up after the visit ends. Check out the Gout Guide: creakyjoints.org/education/go... #Gout #GoutAwarenessDay #Healthcare
Gout can affect much more than your joints. Genene shares how gout flare-ups impacted work, family life, and everyday activities — and why gout is a serious disease. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay #GoutAwareness #GoutEducation
Feeling like your gout is in control instead of you? You’re not alone. If you’re experiencing frequent flares, have high uric acid levels despite treatment, or have developed tophi, it may be a sign that your gout is not well controlled. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay
Gout care starts with understanding your options. In this video, Genene shares why knowing about the ACR Gout Guidelines can help patients, families, and healthcare teams navigate diagnosis and treatment. Learn more: creakyjoints.org/education/go... #GoutAwarenessDay #Gout #Health
Tomorrow is #GoutAwarenessDay. One thing many people don’t realize about gout: even after a flare improves, uric acid crystals can continue building up in the body over time. Understanding gout can help patients take control of their care. Learn more: creakyjoints.org/education/go...
Something bigger than a single vaccine debate is happening across America’s public health system. This week on #TheHealthAdvocates, we break down growing FDA scrutiny, shifting vaccine recommendations and more. 🎧: www.youtube.com/watch?v=BGMK...
Crohn’s disease and ulcerative colitis are more than digestive conditions — they can affect every part of life. To everyone living with IBD: we see you, we believe you, and your story matters 💜 #WorldIBDDay #IBD #CrohnsDisease #UlcerativeColitis #InvisibleIllness
Arthritis can mean redefining what a “good day” looks like. Sometimes the win is making dinner. Finishing laundry. Showing up. Getting through the day. It can also mean canceled plans, disrupted sleep, invisible pain, grief, isolation, and constantly adapting. Arthritis is more than joint pain...
If you've noticed wounds that won't stop draining — you're not alone, and it's not your fault. Ruptured abscesses are a hallmark sign of Hidradenitis Suppurativa (HS), a chronic skin condition that's often misdiagnosed for years. Could this be HS? Take our free check 👉 ghlf.org/hscheck/?utm...
May highlights a range of chronic conditions— Arthritis, lupus, vasculitis, myositis, gout, osteoporosis. Different diagnoses, shared challenges: • Delayed diagnosis • Invisible symptoms • Unpredictable flares Awareness = earlier care + better outcomes. #ChronicIllness #Autoimmune
Something is shifting in vaccine policy—and patients are feeling it. From evolving recommendations to declining trust, the result is the same: confusion. In this episode of The Health Advocates, we break down what’s happening and what it means for patients. Watch: youtube.com/watch?v=jHXf...
Vaccine access shouldn’t depend on how well you can navigate the system. This #WorldImmunizationWeek, we’re connecting trusted vaccine info with real scheduling—directly through our hub. Learn → decide → book: ghlf.org/vaccines/