Long COVID Labs
@longcovidlabs
Non-profit accelerating a cure for 100M+ people with Long COVID. Longcovidlabs.org
Reminder: Deadline to Submit Comments to the FDA on Repurposed Medications is coming up on Monday, July 13! 💊 In case you missed it (or need the reminder!): In May, the US FDA put out a call for public comment on repurposed medications, specifically for rare and poorly understood diseases. 1/
Fascinating study examines role of herpesviruses in Long COVID brain fog - and a dementia drug may help! 🧠💊 This new study from Tokyo Jikei University School of Medicine shines a pretty powerful light on a potential cause of Long COVID brain fog, at least in a subset of patients. 1/
@npr.org highlights former White House Advisory Committee on #LongCOVID, disbanded by Trump administration 1/
New Mass General Brigham study finds rate of Long COVID much higher than we think In this new study, researchers used an AI tool to track how many people tested positive and then later sought care for health problems linked to LC. The number came out at 16% - higher than most estimates. 1/
👉Finnish study finds Long COVID associated with changes in brain activity, rather than inflammation 🧠 This study showed some different results than what we typically see. Researchers did NOT find signs of increased inflammation in LC patients’ brains, compared to healthy controls. 1/
New study finds ensitrelvir (Xocova) and molnupiravir - but not Paxlovid- reduce Long COVID rates if taken during acute infection 💊 Here's a super interesting study out of Japan. Researchers gave one of the 3 above antivirals to patients during their acute COVID infection. 1/
Fascinating new research from @solveme.bsky.social What is going on with T cells in Long COVID and ME/CFS? 🤔👇 In this talk, researchers Dr. Liisa Selin, Dr. Ayano Kohlgruber, and Dr. Roshan Kumar discuss their newest work, arguing that dysfunctional T-cells are driving #MECFS and #LongCOVID. 1/
Important new paper from Steifman et al. looking at blood-based biomarkers of Long COVID in children and young adults (which quite possibly apply to adults too!). 🩸🦠 1/
Why gets Long COVID, and why? Why do Latinos appear to be at higher risk- and can environmental exposures increase risk? Important article from The Spokesman Review examines LC in Latino agriculture workers and questions the possible link to pesticide exposure 1/
New study examines the role of lymphocytes in Long COVID 🩸 Pretty exciting new preprint! Here, researchers examined the activity and function of lymphocytes - white blood cells that are part of the immune system. 1/
Can senescent cells be driving smell loss in Long COVID? 🧠 In a new paper, Tsuji et al. look at a new potential cause of LC smell loss - senescent cells in the olfactory mucosa. 1/
Invivyd's new monoclonal VYD2311 shown to be effective against emerging SARS-CoV-2 variants VYD2311 is Invivyd's new monoclonal antibody. It was designed for pre-exposure prophylaxis in immunocompromised adults, however they're also studying it for Long COVID as well. 1/
Photobiomodulation (Red Light Therapy) for Cognitive Dysfunction in Long COVID 🧠 This new study found a red light device called the Vielight led to improvements in cognitive dysfunction, compared to placebo Why would this be effective? 1/
Platelet-to-Lymphocyte Ratio as a Biomarker of Brain Metabolism in LC 🧠 This fascinating study out of Poland investigated whether there's a correlation between brain fog in Long COVID, and immune markers that can be measured in the blood. To measure brain fog, they assessed patients using: 1/
📢 Clinical trial shows 14 days of metformin has no impact on Long COVID symptoms In this double-blind, placebo-controlled, randomized clinical trial, South Korean researchers tested whether metformin or ursodeoxycholic acid (UDCA) worked to treat Long COVID symptoms. 1/
New study shows relationship between intestinal dysbiosis and neurological symptoms in LC 🦠🧠 Over the years, we have seen some Long COVID patients report dramatic improvements with microbiome-based interventions. This study provides a possible explanation as to why. 1/
Why does Long COVID brain fog seem to affect more patients in the US? 🧠 A recent Northwestern University study surveyed 3,100 long COVID patients from around the world. 🌏 Patients in the US reported symptoms such as brain fog and mental health effects at much higher rates... 1/ bit.ly/4bNfFhN
Long COVID researcher Yong Chen, PhD, wins prestigious Clinical Research Forum Award! Dr. Chen received the Award for his paper: "Long COVID Associated with SARS-CoV-2 Reinfection Among Children and Adolescents in the Omicron Era (RECOVER-EHR).” 1/
Possible new alternative to Paxlovid is on the horizon! 🙏 Traws Pharma is developing a new anti-SARS-CoV-2 antiviral called Ratutrelvir, as a possible alternative to Paxlovid. 💊 1/
Australia allocates $120 million AUD into Medical Research Future Fund (MRFF) that includes Long COVID! Super encouraging! 🙌🙌🙌 The MRFF will support 60 health and medical research projects aimed at improving prevention, diagnosis, treatment, and care of various diseases. 1/
Insightful comment from a member of our Long COVID Labs subreddit! 👇 We are just beginning to uncover the role viruses have played in our biology. Our focus is on COVID-19, but other viruses such as Epstein-Barr are likely at the root of many diseases! 🦠 1/
Really appreciated this comprehensive roundup of new papers from LC patient and blogger Brandon! ✨ Theme of this week's roundup: "Long COVID research is starting to connect dots that used to feel totally separate." 1/
Our Patient Grants are going out! We’re excited to help Long COVID patients access treatments they otherwise might not be able to. 1/
✨✨Why don't we have better Long COVID treatments yet - and what is Long COVID LABS doing to help?? ✨✨ Last month, our founder Rohan appeared on the DeSciNews podcast with hosts Jorge Jiminez and @bioprotocol.bsky.social to talk about our mission. 1/
Update on the Economic Costs of Long COVID: A recent communication in NPJ Primary Care Respiratory Medicine estimates that the economic costs of Long COVID come out to: 🛑$1 trillion annually 🛑Approximately 1% of GDP 🌍 1/
New study finds that SARS-CoV-2 exposure during pregnancy increases the risk of developmental delays by 68% The pandemic is NOT over - we need to solve this crisis urgently 🌏 pmc.ncbi.nlm.nih.gov/articles/PMC...
🚨Attn: Our long COVID Labs iOS app has been SUBMITTED from Testflight to the App Store!!! ✨ You can use our app track to your symptoms, contribute data to our Treatment Leaderboard and integrate with our ECG wearable for an additional biosignal layer. 📈 1/
Our founder Rohan spoke today at Devconnect ARG - The First Ethereum World's Fair! @devcon.org Rohan demoed our mobile app and clinical-grade wearable, as we get ready to launch our upcoming Patient Registry! ✨ 1/
LONG COVID LABS just set a new precedent in digital health and patient-led science. For the first time, a patient registry has achieved IRB approval while using blockchain tokens to reward participants—not with speculative crypto, but with meaningful governance power and real research impact. 1/
🚨This is so important: "After years of denial the international consensus is now shifting,” according to physicist @yaneerbaryam.bsky.social COVID-19 is: 🛑creating a 12.9% increase in workplace absences compared to pre-pandemic 🛑causing a 2% increase in excess deaths vs. pre-pandemic 1/