#LupusChat
@lupuschat
#Lupus Community Our Chat: Sundays at 3 PM ET - 📌🗓️ Next #LupusChat is TBD at 3 PM ET. Moderated by: @tiffanyandlupus.bsky.social, @xtel007.bsky.social, @caringforlupus.bsky.social, @syncenerdcarly.bsky.social
That’s a wrap! Two days of dynamic data and lively discussions around Accelerating Product Development for Pediatric Systemic Lupus Erythematosus (SLE). We are hopeful that this can lead to advancement and approval of more treatments for youth with Lupus.💜 #LupusChat #LADAOrg @ladaorg.bsky.social
Patients and Care Partners, McKenna Bowes, Chloe Raymond, Nis Cooper, Elizabeth SantaCruz, and Miah Andrade for the final patient panel of the day Patient/Family Panel: Risk Tolerance and Enrollment in Clinical Trials moderated by Dr. Stacy Ardoin #LupusChat #LADAorg @ladaorg.bsky.social
Dr. Hermine Brunner shared Lessons Learned from Conducting Clinical Trials in Pediatric SLE. Dr. Brunner discussed how trials have been delayed due to restrictive eligibility criteria and recruitment/enrollment difficulty. #LupusChat #LADAorg @ladaorg.bsky.social
Hey #LupusChat fam! We’re onsite today at the @fda.gov UMBaltimore CERSI Public Workshop: Accelerating Product Development for Ped SLE. Co-hosts @caringforlupus.bsky.social (and Patient Advocate Miah A.) and @syncenerdcarly.bsky.social are in the building to listen, learn, and share experiences.
🎉 Hey #LupusChat fam, join us in wishing our Co-host and sister in advocacy @xtel007.bsky.social a very Happy Birthday! We appreciate your dedication and continued work for the community. We hope your day is as spectacular as you are! 🎂🎈
This #LupusAwarenessMonth, we’re sharing the lessons it’s taught us. Lupus changes your life in ways most people don’t see. 💜 Finish the sentence: #LupusTaughtMe… Reply below + include #LupusChat so others can find your story. ✨
Hoy es #DiaMundialDelLupus! 💜🌍 El lupus es una enfermedad autoinmune crónica que puede afectar a cualquier órgano. Los síntomas pueden cambiar a diario, el diagnóstico puede tardar años e incluso la luz solar puede desencadenar brotes. Ayuda a difundir la conciencia #LupusChat
Today is #WorldLupusDay! 💜🌍 Lupus is a chronic autoimmune disease that can affect any organ, not just joints. Symptoms can shift daily, diagnosis can take years, and even sunlight can trigger flares. Help spread awareness: share this post 💜 #LupusChat
Feliz Día de la Madre de #LupusChat 💜🌸 Hoy honramos todas las formas de maternidad. Madres viviendo con lupus, madres criando a un hijo con lupus, madrastras, madres elegidas, mujeres que querían hijos pero no pudieron, Te vemos 💐💜✨
Happy Mother’s Day from #LupusChat 💜🌸 Today we honor all forms of mothering. Moms living w/ lupus, moms raising a child w/ lupus, stepmoms, chosen moms, women who wanted children but couldn’t, moms grieving loss, & eldest daughters who had to mother siblings. We see you 💐💜✨
Este mayo es el #MesDelLupus 💜 Comparte tu experiencia viviendo con lupus usando #LupusSeSienteComo + #LupusChat. Hagamos visible cómo es realmente vivir con lupus.
May is #LupusAwarenessMonth, and your voice matters. 💜 Lupus is different for everyone & the world needs to understand that. Share your lived experience using #LupusFeelsLike and #LupusChat to help others feel less alone and bring visibility to the realities of this disease.
💜 May is Lupus Awareness Month! Lupus is a autoimmune disease that can impact the entire body & it’s often invisible. This month we encourage you all to help spread awareness, amplify patient voices, & advocate for better diagnosis, treatment, and support for those living w/ lupus. #LupusChat 💜
Hey everyone, please join us in wishing our amazing friend, fierce advocate, and awesome #LupusChat Co-host, @caringforlupus.bsky.social a Happy Birthday! Thank Liz you for all your hard work. It is an honor to advocate alongside you. We love you and hope you have the best day and year! 🥳💜
Happy New Year #LupusChat family! We're another year stronger & we're looking forward to thriving together with each of you in 2026! 🥳💜
Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂
Got SLE? 💜 Been on a biologic? You could earn $150 for sharing your experience in a 90-min online lupus research interview! Ages 21–55, no Lupus Nephritis. Apply by TODAY Aug 8 👉 shorturl.at/GfJk5 #LupusChat
Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!! ~The #LupusChat Team 💜
Disfrute del resto de su día & acuérdese de practicar el cuidado de sí mismo hoy porque además #LupusChat también es #SelfcareSunday!
Enjoy the rest of your day & remember to practice a little (or a lot) self-care today because besides #LupusChat it's also #SelfcareSunday!
Mantén viva la conversación usando la etiqueta #LupusMeEnseño para compartir tus experiencias personales, grandes o pequeñas. Tu historia podría ser la que alguien más necesita ver para sentirse menos solo o más comprendido. Cada voz ayuda a crear conciencia y comunidad. 💜#LupusChat
Keep the conversation going by using the #LupusTaughtMe hashtag to share your personal experiences, big or small. Your story might be the one someone else needs to see to feel less alone or more understood. Every voice helps build awareness and community. 💜#LupusChat
Thank you for sharing your stories, strength, and honesty in today’s #LupusTaughtMe discussion. Your voices help others feel seen, understood, and less alone on this journey. 💜 #LupusChat
Gracias por compartir sus historias, fortaleza y honestidad en la charla de hoy #LupusMeEnseño. Sus voces ayudan a otros a sentirse vistos, comprendidos y menos solos en este camino. 💜 #LupusChat
Q6: How has living with lupus shaped the way you move through the world today? Use #LupusTaughtMe to shout out the lessons, shifts, and strength you've gained along the way. #LupusChat
Q6: Cómo ha influido vivir con lupus en la forma que tu vives hoy? Usa #LupusMeEnseño para destacar las lecciones, los cambios y la fortaleza que has adquirido a lo largo del camino. #LupusChat
Q5: What did lupus teach you about friendships, the good, the tough, or the “thank u, next” kind? #LupusChat
Q5: Qué te enseñó el lupus sobre las amistades: las buenas, las fuertes o las que te dan las gracias, tipos? #LupusChat