Liz Nevra A.

@nlizaki

#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid

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Liz Nevra A.@nlizaki· 29d

💜🩵 Save Nevra - July Update 🩵💜 Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Nevra's situation has deteriorated significantly. After a recent hospital admission, she has moved back temporarily to her original home, which is unsustainable long term. She's living in a non-ME friendly environment, which given her severe state puts her physical and mental health at extreme risk. The urgent need is to fundraise for a safe, mold-free apartment of her own, trustworthy carers, a PA who can help her move, and help with patient advocacy and care coordination. July goals: Apartment deposit: £1288.03, Carer: £171.74, PA: £214.67, Food: £201.25. Infusions: £122.08, Dr Trevino appointment: £74.84, Total: £2072.61

Nevra is currently managing approximately 10 different difficult situations, including negotiations with the hotel to escape mould and methane gas, negotiating with her family, local PAs, lawyers and local doctors to ensure they don't drop her as a patient. This is above what any very severe ME patient should do and is completely unsustainable for her. She also still needs financial support for upcoming specialist appointments. Care in another country would be preferable, but this could cost $100k for an air ambulance alone.

Liz Nevra A.@nlizaki· Jul 4

Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Photo of blossoms on a tree with text overlaid that reads "Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer"

Liz Nevra A.@nlizaki· Jul 2

Open letter to ME organizations from the global south. Where are your resources for me? I am reaching out because I urgently need help. I have previously volunteered within the ME community, including translating resources related to Unrest into four languages.

Liz Nevra A.@nlizaki· Jun 25

The price I'm paying for trying to stay away from family DV with no local support as a very severe mecfs patient who should be resting. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Photo of a pulse oximeter with an oxygen reading of 99% and a heart rate reading of 135 beats per minute. Text reads "the price I pay for fun - raising as a very severe mecfs patient forced to push past nausea & pem to stay away from DV. I wonder if I'm worth it. I've run out for pleas. Please boost, with links, share or doe nate because I can't do this anymore."

Liz Nevra A.@nlizaki· Jun 24

Xx please give me some spoons Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Liz Nevra A.@nlizaki· Jun 21

Please xx Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME

Simple text graphic reads: "Please boost, share, and/or do (donut emoji) nate. There are no new donations on the fun raiser and we are at the end of our goal almost for a permanent escape from DV and being stuck in a hotel with mould and methane gas that is slowly k****ng my immune system and lungs. So please, please, I don't know what plea to make but free me for once and all. I cannot go back to DV. I'd be punished and I'd never get to speak to you guys again. This is my last attempt."

Liz Nevra A.@nlizaki· Jun 19

Urgent Nevra update! We still have £1,865 to raise to keep Nevra in a safe environment away from domestic violence. Thanks to ongoing support from community, Nevra has been able to meet some immediate needs & urgent costs such as rent, care support & food.

Liz Nevra A.@nlizaki· Jun 13

Helps arrive way too late for v severe mecfs patients when we can't access it PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #pwME

Simple text post reads "Helps arrive way too late for v severe mecfs patients when we can't access it"

Liz Nevra A.@nlizaki· Jun 11

Urgent Nevra June Update! We have raised £2,732- enough to temporarily cover urgent costs. But we still have £2,918.54 left to raise toward the next critical stage of keeping Nevra safely housed & medically supported. Nevra's facing the increasing likelihood of having to return to DV.

Liz Nevra A.@nlizaki· Jun 10

3rd blue rose of the week. When will the world wake up? #pwME

Simple text post reads: "3rd m.e d3ath this week [followed by 3 candle emojis and 3 blue heart emojis]"

Liz Nevra A.@nlizaki· Jun 9

Update: £3,078.72 raised, £2,571.28 left to raise. Thank you so much to everyone who has donated, shared, and supported me. Every bit of support makes a difference. ❤️ PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #pwME

Update: £3,078.72 raised out of £5,650.54. £2,571.28 left to raise.

Thank you so much to everyone who has donated, shared, and supported me. Every contribution has helped me stay safe, housed, and access medical care.

Unfortunately, I am still bleeding and the bleeding has started again despite ongoing treatment attempts. I'm due to see my doctor today and am hoping for some answers.

Please keep sharing if you can. Every bit of support makes a difference. ❤️

Liz Nevra A.@nlizaki· Jun 8

Imagine this. Having Severe ME. Voicing that you need to rest. Negotiating with your ab*ser. This isn't family. Please don't let me go back to DV. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #pwME

Simple text graphic reads:

Imagine this.
Having Severe ME.
Voicing that you need to rest.
Negotiating with your ab*ser.
But they literally chase you around the house so they can trauma dump, and if you say no, there are repercussions. You plead on your knees that you are sick, and they look at you coldly, saying it's because you're not allowing me to heal you.

This isn't family. Please don't let me go back to DV. You run from room to room, trying to hope they won't find you whilst crashing.

Liz Nevra A.@nlizaki· Jun 6

Please don't let me go back. Please. And please boost previous posts. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Graphic reads: My ab*ser thinks he can cure my mecfs and I just haven't prayed enough. So he would also send the ambulance back if I called one. Please don't let me go back to dv.

Liz Nevra A.@nlizaki· Jun 4

❤️🧡 Save Nevra - June Update 🧡❤️ Share this post and engage in the comments! PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Nevra is now dealing with severe autonomic, hormonal, immune, neurological and respiratory diseases that keep triggering each other. She desperately needs multi-disciplinary care.
She has now been bleeding outside of her period for over 18 days straight. Drs agree that her endometriosis and PMDD situations are too severe to be ignored, but she is also too medically complex to be effectively managed. Nevra urgently needs to be able to move to a mould free apartment in an accessible building with a functional elevator. May goals: Total: £5650.54/$7598.35 for rent for 2 rooms, carer, food, deposit for apartment and furniture for new apartment. £2732 raised so far,€2918 remaining

Nevra is reacting to absolutely everything-scents, cleaning chemicals, environmental exposures and more - causing repeating choking episodes and asthma attacks.
Recent funds had to go to hospital admissions but she is still requiring a second hotel room to isolate mould contaminated items and reduce deterioration from mould exposure. Raising funds for a safe, mould free apartment is now more than essential than ever so that Nevra can escpae the situation she is trapped in and can avoid returning to DV.

Nevra is in a situation again where she may be left with no choice but to return to her abuser after escaping DV in 2024, but she would rather not be here than be forced to do that. Even a 2 minute call with him leaves her shaking and re-traumatised.
Nevra is juggling a failing body, homelessness, medical trauma, discrimination and simply being born in a country that cannot meet her medical needs.
She is exhausted and needs sustained support and help.

Liz Nevra A.@nlizaki· Jun 3

The constant battle of homelessness vs. treatment is getting too much for this very severe mecfs patient. The fact that I may really just have to go back to DV is k*11ing me. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra

Graphic reads
Nevra Ahmed: I feel cornered by life again.
Nevra Ahmed: No matter how hard I try, it just doesn't work.
Nevra Ahmed: My abuser is also so hurtful even when he thinks he's being nice. He only sees us as an extension of himself. Not as actual human beings who suffer.
Nevra Ahmed: He keeps saying all this bs, and the only reason I'm not responding is because I might need to go back home.
Nevra Ahmed: But just being on the phone with him for two minutes is traumatizing.
Nevra Ahmed: He really thinks he's my cure.

Liz Nevra A.@nlizaki· Jun 2

At a loss for pleas or words. Fought so hard. But please do help. I don't have the spoons for pleas. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis #KeepNevraOutOfDV

Screenshot of a text message conversation reads:

Nevra: Like please don't let me go
Friend: I wish I had enough money to make sure you stay out of that house
Friend: I hear you
Nevra: Maybe start a campaign
Nevra: #KeepNevraOutOfDV
Nevra: That way I can get steroids, my immune system can calm down.
Friend: How do we reach people outside of our community?
Nevra: And then I can hopefully move into an apartment if I have the deposit

Liz Nevra A.@nlizaki· Jun 1

Nevra desperately needs to raise funds for rent to avoid returning to DV. Can you spare $5, or like/share this post? PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis #KeepNevraOutOfDV

Graphic reads: My ab*ser thinks me returning to him means I'll be cured because he genuinely believes he's the cure and has been keeping tabs on my health and fundraising situation. Please don't let me go back. He's even worse now because he has AI and it constantly validates him.

Liz Nevra A.@nlizaki· May 30

Nevra is struggling to pay for access to housing and lifesaving healthcare. Please donate, like, share, and comment. 🩵 PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis

Liz Nevra A.@nlizaki· May 27

Please keep me in your thoughts and prayers. Sharing my story, amplifying my fundraiser, or helping me access proper coordinated care helps more than people realise. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis

Liz Nevra A.@nlizaki· May 24

Nevra is choosing between homelessness, mould exposure, or gas exposure just to survive. She’s severely reacting to mould, chemicals and a methane gas leak in her home. Very Severe ME makes ordinary exposures life‑threatening. She needs urgent help. 🤍

Liz Nevra A.@nlizaki· May 20

Nevra urgently needs funds to pay for a hospital visit for heavy bleeding. If you can, please consider donating, and even if you can't do that, please share this post 🧡 paypal.me/SaveLizNevra gofundme.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Liz Nevra A.@nlizaki· May 16

💙🩵 Save Nevra - May Update 🩵💙 Please donate, share this post, engage in the comments! paypal.me/SaveLizNevra gofundme.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Save Nevra - May Update: Nevra is still severely reacting to mould and chemicals in her accommodation and is struggling to find a suitable and safe alternative living situation. Before she has a chance to recover from one exposure, she is being exposed to a methane gas leak in the bathroom, which has worsened her condition so severely that she is now reacting to almost everything, including shampoos and basic hygiene products. She is also reacting to many medicines and supplements prescribed by doctors, making stabilisation extremely difficult.
May goals: 1. $2015 USD/£1503 for rent - additional costs for 2nd room needed to safely isolated contaminated belongings, 2. $267/€200 for food, 3. $217/£159 for a carer

Nevra is repeatedly being forced to do more than she is physically able to with Very Severe
ME in order to get her basic needs met. Because there is very little local support, she is still injured and recovering from trying to demould and move her belongings herself during previous exposure incidents.
Due to ongoing reactions and unsafe conditions, she is still unable to safely demould and sort through all of her belongings, which means she still requires a second room to isolate contaminated items and reduce further deterioration.

Nevra is exhausted, heartbroken, and overwhelmed. First she was forced to choose between homelessness and medical care.
Now she is being forced to choose between mould exposure and methane gas exposure, while trying to survive severe neurological and respiratory symptoms. She is frequently left choking and struggling to breathe even during important telehealth appointments.
Any support: donations, shares, or kind words are deeply appreciated.

Liz Nevra A.@nlizaki· May 9

Nevra's struggles to access basic services in Pakistan are compounded by her status as a victim of DV. Without continued funds, she risks being returned to DV.

Screenshot of an instagram post reading "Freedom is not free. Ask me, a DV ref*gee trying to access basic healthcare and shelter/safe housing. Freedom is not free. #MA #DV #MillionsMissing"

Liz Nevra A.@nlizaki· May 9

Freedom is not free- a poem by Nevra Please donate/share to help Nevra access lifesaving medical care and rental housing. paypal.me/SaveLizNevra gofundme.com/f/save-nevra #SaveLizNevra #MECFS #pwME #ChronicIllness #severeME

Text reads: "Freedom is not free I Shrieked
Freedom is not free
it is rented by the hour,
paid in small blue buttons
that say d.nate
or come back later.
Freedom is not free
it is data bundles and dying batteries,
a phone that flickers
between connection and silence,
between I’m still here
and disappearing.
Freedom is not free
it is mutual aid,
hands reaching across oceans
not because systems worked
but because they didn’t."

"What does it cost
to stay alive one more day?
A meal.
A room without mould.
A signal strong enough
to hear a voice say
I’m with you.
Freedom is not free
it is water carried,
it is medicine rationed,
it is the quiet arithmetic
of survival:
if this much comes in,
I get to rest.
if it doesn’t,
I negotiate with pain.
Donations dry up
like taps in a city that forgets you.
But thirst doesn’t pause
for algorithms?"

"Freedom is not free
it is hugs translated through screens,
kisses buffered in pixels,
love held together
by strangers who choose
to care.
And still
we ask, again,
not because we want to
but because we must:
Help me stay.
Help me eat.
Help me breathe long enough
to reach something like freedom.
Because freedom
real freedom
is not a metaphor.
It is this:
food, water, safety"

"Because freedom
real freedom
is not a metaphor.
It is this:
food, water, safety,
a body that is allowed
to keep going.
And right now,
it costs more
than I can carry alone.

(C) Nevra Elis
#pwmE #severeme"

Liz Nevra A.@nlizaki· May 5

Nevra's health continues to decline, with severe cardiac symptoms that warrant quick attention. Please consider donating and/or sharing to help Nevra access the medical care she needs. paypal.me/SaveLizNevra gofundme.com/f/save-nevra #SaveLizNevra #MECFS #pwME #ChronicIllness

Screenshot from Nevra's instagram reads "My cardiac symptoms are freakign me out and I'm too ill to go to the hospital. Either a home GP or trying to contact my GP"

Screenshot from Nevra's instagram reads "Since I left the hospital, it's been one trauma event after the other, one exposure after the other, and I've had to stop trialing luteolin and berberine"

Liz Nevra A.@nlizaki· Apr 29

🌸 UK Raffle for Nevra 🌸 There are 3 bundles to win! 🌸Raffle closes midnight BST 14th May🌸 All funds raised will go towards safe housing, treatments, & carers for our dear friend 💜

Liz Nevra A.@nlizaki· Apr 24

Nevra may have to return to DV if she cannot continue to pay for a hotel. She desperately needs a caregiver but there is no infrastructure for this in Pakistan. Please donate/share: paypal.me/SaveLizNevra gofundme.com/f/save-nevra #SaveLizNevra #MECFS #pwME #ChronicIllness

Liz Nevra A.@nlizaki· Apr 17

‼️ Nevra Housing Update: Urgent Funds Needed ‼️ Nevra is currently paying for two rooms and having to do intensive demoulding labour while moving between them. This is exhausting, unsafe, and not sustainable. Please donate/share: paypal.me/SaveLizNevra gofundme.com/f/save-nevra

Liz Nevra A.@nlizaki· Apr 16

Please donate and share to support Nevra paypal.me/SaveLizNevra gofundme.com/f/save-nevra Just to clarify: the total shown on GoFundMe reflects all funds raised to date, not what remains. All spending for essential needs is fully documented, with receipts and records available on the blog.

The total shown by GoFundMe reflects all funds raised to date, not a current remaining balance. Funds used for essential needs are fully documented with receipts, transaction records, and bank statements available on the blog.
Over the past four years approximately £40,000 has been raised. These funds have supported critical survival needs.
At present, the remaining funds are insufficient to cover hospitalisation and rent. They are also not enough to sustain ongoing lifesaving medical care, ensure protection from domestic violence, or secure stable housing.

Liz Nevra A.@nlizaki· Apr 8

❤️ Nevra April Update ❤️ Nevra is very unwell and unable to use her phone much. She’s dealing with severe faecal impaction + extreme reactions to mould, chemicals, and poor air quality. Recent storms + hotel renovations have made things worse. paypal.me/SaveLizNevra gofundme.com/f/save-nevra