Pulmonary Hypertension Association
@phassociation
PHA is the oldest and largest pulmonary hypertension association dedicated to supporting patients, families and health care providers. #PHAssociation #PHA
#PH treatments can be costly with or without #insurance coverage. Several organizations offer financial assistance for copays and premiums to help cover medical costs. Learn more on the PHA website: buff.ly/QnVETDm
To beat the heat this summer, monitor daily forecasts and limit your exposure when temperatures rise. You can better regulate your body temperature by doing outdoor activities in the early morning or late afternoon instead of during extreme heat. Learn more: buff.ly/2Ssudgf
Join PHA for a webinar on how to prepare for negotiation and promotion conversations. Speakers will discuss building sponsorship relationships and creating roadmaps for long-term career growth. The Women’s PHorum is sponsored by Gossamer Bio with support from PHA. Register now: buff.ly/VlwkqdR
Are you looking for more information on inhaled therapies to treat #PH? Join PHA on Thursday, July 23, at 2 p.m. EDT/6 p.m. UTC to learn about currently approved treatments and new therapies being studied in clinical trials. Register now: buff.ly/9Z0Ik9Y
Join us tonight, July 15, at 8 p.m. EDT for our monthly virtual Young Adult Support Group. Connect with other young adults with #pulmonaryhypertension and share experiences, support and tips to thrive with PH. Register now: buff.ly/hX1DBAW
PHA exists to make sure that every person with PH has dedicated people in their corner. As our 35th anniversary campaign comes to a close, we don’t want you to miss this moment. Help support others in the PH community by making your gift today. buff.ly/iPIMFja
Join us tomorrow, July 15, at 7 p.m. EDT for our monthly virtual Caregiver Support Group meeting. Connect with others who understand what it’s like caring for someone with #PH and share caregiving strategies and advice. Register now: buff.ly/6sCMIpo
PHA is now accepting applications for the AHA/PHA 2027 Postdoctoral Fellowship. In partnership with the American Heart Association, the initiative supports research focused on #pulmonaryhypertension and pulmonary vascular disease to improve patient outcomes. Apply now: buff.ly/p2hEAwo
Join us tomorrow to learn how new Medicaid rules could affect the #PH community. Jaeger Spratt, PHA’s advocacy and treatment access manager, will discuss new work requirements, shortened redetermination windows and more. Register now: buff.ly/zrj16UQ
Want to learn the latest about #pulmonaryhypertension? PHA News brings timely updates about PH, patient stories and community events to your inbox every other week. Subscribe today: buff.ly/pbQiEYL
PHA recently honored six members of our community with our Kitchen Table Society Awards. The awards acknowledge financial support and enduring trust and belief in PHA’s mission. Learn more: buff.ly/T7XOzYT
In 2001, Lilian Cecilia Garzón Yory was diagnosed with #PH related to an atrial septal defect. She currently serves as the deputy director of projects at Fundación RHYO, a Colombian nonprofit organization that supports people with rare diseases. Learn more about her story: buff.ly/XDHkXd2
Tanya Chapman Griffin sought answers for her shortness of breath and persistent cough, and felt doctors dismissed her concerns because of her weight. When she insisted on seeing a second pulmonologist, testing revealed 12 blood clots. She was later diagnosed with PH. Learn more: buff.ly/gZNuWYu
The PHA Board of Trustees began its new term July 1 with new officers and five new members. The new officers will each serve for two years. Learn more about them on our website. buff.ly/zYOrQlq
People with #PH may be more susceptible to overheating because certain PH medications can interfere with how the body regulates temperature. If you start experiencing symptoms of overheating, go indoors and place a cold towel on your body. Learn more summer safety tips: buff.ly/nPC9q8N
Join us tomorrow, July 8, at 8 p.m. EDT for our monthly virtual Parent Support Group. Connect with other parents and learn strategies and tips on how to best manage your child’s #PH. buff.ly/aM9LHG2
For 35 years, PHA has focused on uplifting patients, educating healthcare professionals, and investing resources in PH research. Today, a person diagnosed with PH doesn’t have to face it alone. Make a gift in honor of someone who has helped make this journey possible. buff.ly/hCy2ZS4
PHA’s Quarterly Impact Report highlights how PHA fulfills its mission by giving patients tools to advocate for themselves. In the latest report, Maryellen Ramstack, a retired nurse who lives with PAH and CTEPH, shares her experience attending Hill Day in 2025. Learn more: buff.ly/evtrmwG
On June 24 and 25, PHA coordinated a virtual Hill Day in support of the #SOARAct. Thirty advocates from PHA and other partner organizations met with 29 legislative offices, urging lawmakers to support this crucial #OxygenReform bill. Thank you to everyone who participated!
“Navigating Pulmonary Hypertension” is a guide for newly diagnosed patients and their families to find answers and support about #PH. The guide contains information on PH diagnosis, treatment, symptoms and quality of life Read now: buff.ly/AwEjdrd
Audra Armstrong became a PHA volunteer after her mom passed away from #PH in 2017. As a member of PHA’s Dallas Support Group, Audra has learned a lot about PH and enjoys supporting caregivers in the group. Learn more: buff.ly/6t15nyu
Neal McDermott shares his journey living with #scleroderma and PAH. His story offers #hope and encouragement, emphasizing resilience and the potential for improved quality of life through #treatment and #transplant evaluation. Listen now: buff.ly/TK4xawz
To help you prepare for the summer heat, pediatric cardiologists Usha Krishnan and Sanjeev M. Gupta share summer safety tips for individuals living with #PH. Learn more: buff.ly/nPC9q8N
Join PHA for an upcoming webinar on inhaled therapies for treating #PH. Experts will provide an overview of currently approved inhaled therapies and information about using and managing them safely. Register now: buff.ly/qtQkA31
Connecting with other parents of children with #PH provides vital emotional #support, shared knowledge and a sense of #community. Join PHA’s “Parents of Kids with PH” Facebook group to find advice and tips on raising a child living with this rare condition. buff.ly/BUOpEgD
Many men find it difficult to open up about their emotions or health struggles. As a result, men living with #PH can feel isolated and alone. During Men’s Health Month, learn more about the unique experience of men living with PH. buff.ly/n9lxhnb
#PAH is a common complication of #scleroderma, and screening for PAH is recommended even if symptoms aren’t present. Learn more about the connection between #PH and scleroderma in our free brochure. buff.ly/Sn0pu86
On the latest episode of PH Insights, researchers and PHA contributors Steven Abman, Greg Elliott, Karen Fagan and Paul Yu discuss their research and how it’s helped advance #PH #treatments and #diagnosis. Listen now: buff.ly/ugBGg6L