Looking for community this August? 💙 Aug. 4: Support Group—Caretaking While Chronically Ill Aug. 12: Special Edition "Coffee" with a Clinician for #SevereMEAwareness Month Aug. 18: Support Group—Self-Compassion Amidst Disease Register: https://bit.ly/4npZ4Ud

More than 125 people have already shared what's missing. Patients and caregivers are asking for practical tools to help with self-advocacy, managing daily life, and understanding ME/CFS, Long COVID, fibromyalgia, and related conditions. Help shape what's next: https://bit.ly/4oKuFkY

Five organizations. One conversation. Join us Aug. 12 at 10 a.m. MDT for a special "Coffee" with a Clinician recognizing Severe ME/CFS Awareness Month. Featuring Bateman Horne Center, @openmedf.bsky.social , @solveme.bsky.social , @meactnet.bsky.social  & WIMEL.  Register: https://bit.ly/3JCHAFq

Reminder: Submissions are due Wednesday, Aug. 5. There's still time to share your story for our In Their Words series. A short reflection, audio, or video can help others better understand severe ME/CFS. 💙 Submit here: https://bit.ly/4ftJXq5 #SevereMEAwareness #MECFS

One of the hardest parts of chronic illness isn't just the diagnosis, it's having to explain it. Hear why Bateman Horne Center's mission is personal to our Executive Director, Tahlia Ruschioni. 💙 Help keep free patient & clinician resources available: bit.ly/4oKuFkY

💙 HELP THAT DOESN'T WAIT - Support: https://bit.ly/4oKuFkY When a child has Long COVID or ME/CFS, parents often become their child's biggest advocate. Our free pediatric resources help families understand these conditions and navigate school, healthcare, and home.  https://bit.ly/4bHDerj

In Their Words This August, we're inviting people living with severe ME/CFS and caregivers to share their stories. Video, audio, written, or an image with a reflection, whatever feels possible. Submissions close Wednesday, August 5. Share your voice: https://bit.ly/4ftJXq5

Every Clinical Care Guide represents more than a finished product. It's built on evidence, shaped by patient experience, and created by a team dedicated to improving care. Help us keep this work going. 💙 https://bit.ly/4oKuFkY

Help that doesn't wait. Our partnership with @emergeaustralia.bsky.social offers free, self-paced modules on PEM, pacing, orthostatic intolerance, sleep, pain, and cognitive impairment (brain fog). Practical education you can access whenever you're ready. 🔗 https://bit.ly/4byA8pw

Reminder: BHC's Support Group meets tomorrow at 1:00 PM MDT. This month's discussion, Limits, Wants, Boundaries & Needs, explores honoring illness limits, setting healthy boundaries, and caring for yourself while living with chronic illness. Register: https://bit.ly/4npZ4Ud

Better care starts with better education. Project ECHO helps healthcare providers build practical skills in recognizing and managing ME/CFS, Long COVID, fibromyalgia, and related conditions. Project ECHO series: https://bit.ly/4fndpy0 @uofuhealth.bsky.social @openmedf.bsky.social

Many people living with ME/CFS & Long COVID become experts in their own health out of necessity. Explore free BHC tools that help patients prepare for appointments and support conversations with healthcare providers. 🔗 https://t.mtrbio.com/BHCPatientResources

YOUR VOICE HELPS SHAPE WHAT WE BUILD Your feedback helps us create educational resources that better serve this community. If you have a few minutes, we'd love to hear from you. 📋 https://bit.ly/4vIpmFg

Finding support shouldn't depend on your ZIP code. Explore BHC's free State-by-State Resource Directory to find healthcare, disability services, transportation, food assistance, mental health resources, state organizations, and more. 📍 https://bit.ly/3ZBBIAC

PEM is one of the hallmark symptoms of ME/CFS and affects many people living with Long COVID, yet it's still widely misunderstood. Explore free BHC resources on PEM, pacing, and recovery. 🔗 https://t.mtrbio.com/BHCPatientResources

WHAT PATIENTS NEED YOU TO KNOW On #ChronicDiseaseAwarenessDay, we're highlighting videos that help patients share their experiences and increase understanding of ME/CFS. https://t.mtrbio.com/BHCPatientResources #HelpThatDoesntWait

Education matters. Community matters too. Living with ME/CFS & Long COVID can be isolating. Explore BHC's Support Groups, Outreach Event Recaps & "Coffee" with a Clinician recordings, and join our mailing list for future events and resources. 📩 Sign up: https://bit.ly/3POhK4d #HelpThatDoesntWait

Sleep challenges in ME/CFS and Long COVID are often more complex than poor sleep habits alone. Join us Wed, July 8 at 10 AM MDT for a free "Coffee" with a Clinician on restorative sleep, the drivers of fragmented sleep, and practical, evidence-informed strategies. Register: https://bit.ly/3JCHAFq

Work loss and financial stress can be an overwhelming part of living with chronic illness. Join our online Support Group on Tues, July 7 at 1 PM MDT as we discuss coping with changes to work, navigating financial stress, and supporting one another. Register: https://batemanhornecenter.org/events/

When an ME/CFS crash happens, timely guidance matters. Our free ME/CFS Crash Survival Guide and Testing Recommendations help patients, caregivers & healthcare professionals navigate the next steps. 📘 Explore: https://t.mtrbio.com/BHCPatientResources

Getting answers for ME/CFS, Long COVID & other IACCs can take years. Our free Clinical Care Guide distills 10+ years of clinical expertise into one practical resource. Resources: https://t.mtrbio.com/BHCPatientResources Support: https://bit.ly/4oKuFkY

HELP THAT DOESN'T WAIT https://bit.ly/4oKuFkY  Living with a complex chronic illness often means becoming your own researcher, advocate, and educator. Throughout July, we'll be sharing free BHC resources designed to support people living with ME/CFS, Long COVID, fibromyalgia, & related conditions.

Looking for support or practical education this July? Join us for three free online events: • Tues, July 7 – Support Group: Work Loss & Financial Stress • Wed, July 8 – "Coffee" with a Clinician: Sleep Challenges • Tues, July 21 – Support Group: Boundaries & Needs Register: https://bit.ly/4npZ4Ud

Stay connected with Bateman Horne Center. Sign up for our email list to receive educational resources, event announcements, research updates, and more. 📧 https://bit.ly/3POhK4d

Sometimes the most meaningful reminders of why we do this work arrive in the mail. Recently, Dr. Bateman received this handwritten note from a person living with ME/CFS. Thank you to our community for your stories, encouragement, and trust. 💙

In Case You Missed It: New MERC training video on the 10-Minute NASA Lean Test (Passive Stand Test). Learn how clinicians can assess orthostatic intolerance in ME/CFS and Long COVID with this practical, clinic-friendly tool. Watch: https://youtu.be/96GCnYWX8D4 @openmedf.bsky.social

Living with chronic illness can come with misunderstanding, dismissal, and invalidation. 💙 Join us June 16 at 1 PM MDT for our virtual support group: My Illness is Real and So Am I: Successfully Facing Invalidation, Prejudice & Discrimination https://batemanhornecenter.org/events/

☕ Join us Wed, June 10 at 10:00 am MDT Section 4.7 Management of PEM This session will explore pacing, energy conservation, symptom tracking, supportive interventions, and individualized routines that may help support symptom stability and reduce PEM crashes. Register: https://bit.ly/3JCHAFq

After developing Long COVID in 2020, Christy was later diagnosed with ME/CFS and other complex chronic conditions. Her story is a reminder that adapting to illness doesn't mean losing who you are, it means discovering new ways to move forward. 💙 #LongCOVID #MECFS

Medical Terms, Explained Biomarkers are measurable signs in the body that can help diagnose, monitor, or understand disease. Researchers are actively studying potential biomarkers for ME/CFS and Long COVID, but no single biomarker is currently used to confirm ME/CFS. https://bit.ly/4jScKFu