Dalila
@dalilatm
Interested in research ethics and all about #lupus #lupusnephritis | Running support group #Wales 🏴| We need a cure for Lupus 🦋 #MyViews
#Day3 #wolfsonsummer26 Wonderful talk by Prof Jeremy Hall on the importance & application of #neuroscience in psychiatry. 💡A great overview of where mental healthcare stands today, where research is heading, & how combining disciplines is helping go even further @wolfsoncentre.bsky.social
💡 Day 1: @wolfsoncentre.bsky.social ‘Summer School’ in Youth Mental Health Research 🧠🙌 Starting with a key question 🧐 Are mental health problems in young people actually increasing, or are we changing the way we recognise, research and diagnose them? ➡️ Trends #MentalHealth #Research
🦋 Grateful to have taken part in the 2026 BSR guideline update for #lupus management and to share my experience and the patient voice in such a complex condition. 😍 Really hopeful this new approach will help strengthen care for everyone living with lupus in the UK. Check it out!
💡 Takeaway from today’s #EULAR2026 -> Adam Handel’s #Oxford talk on AI & lessons from neuroinflammation 🤖🧠 Plenty of research showing both clear limitations & many opportunities. 🔄 Ongoing validation is key ➡️ “If you can’t train the system to do something, then it’s not going to be functional.”
#EULAR2026 Dr Karen Schreiber 🇩🇰 shows data on where patients find information about family planning -> 👨💻 online sources highly influential.💡She highlights a key issue: medication guidance can differ across clinical guidelines, expert advice, & product labels 😵💫 creating potential confusion #pregnancy
#EULAR2026 Interesting 💡 Dr. Mrinalini Dey'study found that fatigue & psychosocial health were strongly linked to physical function. #Lupus isn't just inflammation & organ damage: Patient-Reported Outcomes (fatigue, mood...) are central to day-to-day functioning🚶♂️🏋️ 📽️ Preview youtu.be/FC0kEFwiU6E?...
🩵 The start of #EULAR2026 didn't disappoint! The first sessions were ‘full of energy’ 🔬😅 bringing together different perspectives on the role of mitochondria⚡️ in autoimmunity, including #lupus 🥳
📝 Nice journal club session today at @kingsioppn.bsky.social. Interesting to hear from Dr Valeria Parlatini about the specific structural brain differences vs #ADHD medication response, and cohort specifications. Until next month! #neuroscience
Today! #WorldLupusDay 🤩🦋 Excited about all the global awareness and looking forward to seeing Cardiff Castle lit up purple! 🏰🏴💡#Wales #Lupus
#BankHoliday 📖🤓 Great day catching up on all the lupus work presented last week at the British Society for Rheumatology #BSR26 conference #Glasgow 🔗 academic.oup.com/rheumatology...
⭐️ Great group meeting and discussion this week with Lauren Bruha, MSc, sharing research findings on #lupus & eating behaviours 🍓🥑🍞 and her current PhD research. Looking forward to learning about future findings in this area and how they can lead to better support #Cardiff 🦋 @lolobruha.bsky.social
💜 I wish we could see programmes like this across communities, supporting the development of the basic tools we need to live with the lifelong challenges of #lupus #SLE #childhood #USA www.eurekalert.org/news-release...
🌟 Great to see this article on autoimmunity in the latest issue of 'Advances Wales' 🔬 ‘New research uncovers promising target for autoimmune disease treatment’ #Wales #ABHD11 @swanseauni.bsky.social 🔗 businesswales.gov.wales/topics-and-g...
🦋 Great to learn more about Lupus Ontario’s work at their AG Meeting today covering awareness, education, fundraising, support, & research. ⭐️ Dr Ian Bruce (Belfast/Manchester) gave an excellent talk on #lupus damage: when should damage be considered if lupus activity can start long bf diagnosis?
The dilemma didn’t last long - watched ☑️ Great performance, emotions expressed so beautifully #Hamnet #JoinedtheHype
🦋 Merry Christmas and Happy 2026! 🎄✨ May this season be full of hope, and may the new year bring a brighter future for people living with lupus... a big step forward! 🙏💜
#Lupus #LifeStories #Australia “It’s a strange thing to say that finding out someone else shares the same condition as you makes you happy, but I think Asher and I both understand what that means,” www.vogue.com.au/culture/feat...
📚 Great all-day course with Dr. Anna Scarnà today, diving deep into Abnormal Psychology. Energising discussions and plenty of reflections to take away @ox.ac.uk #Oxford #University #Psychology
💻 Great to have attended the OPTIMISE-ing Informed Consent webinar on designing more inclusive consent processes in trials 🙋🙋🏻♀️ 🗣️ Helpful to explore many of the issues we often encounter when reviewing #REC applications involving people who lack capacity. Thank you @vickylshepherd.bsky.social
🤩 Wonderful day yesterday at the NHS Wales Awards – thanks to @cedarcardiff.bsky.social for their great public involvement work. Delighted that the project, ‘Development of the NHS Wales People’s Experience Survey’, was a finalist for the Person-Centred Care Award! 🎉
One of my favourite books on #lupus since it came out — clearly structured, great for discussion. I keep coming back to it 📖 Thanks to editor @zahitouma.bsky.social and team
🌟 Great to have attended yesterday’s @daringtodream.bsky.social ‘Making Space’ event! Inspiring to learn about their work on emotional support through new spaces & music. We even learned about recent Cardiff Met research & their supportive dancing robots across hospitals in #Wales 🤖
🦋 Lupus Webinar this Thursday! #lupusnephritis #lupus #SLE Hosted by the JIR Academy: “Lupus Nephritis: From Guidelines to Paediatric Practice” 🗓 Oct 16 | 13:00 CET Talks by Pr Kamphuis & Pr Aggarwal + clinical cases by Dr Yasaswini & Dr Nolan 🔗 www.jircohorte.org/jirevents
Happening this month: ENCA Online Event 2025 💻 An interactive online event for health professionals, patient representatives, and families in paediatric rheumatology. 📅 Saturday, 25 October 2025 🕤 09:30 – 13:00 (CET) encanetwork.org/event/