Down's Syndrome Association
@dsa-uk
We are a national organisation, committed to improving quality of life for people who have Down’s syndrome, promoting their right to be included on a full and equal basis with others.
Time is an abstract concept and one that many people can find difficult. For instance understanding how long is 10 minutes? In our resource, we talk about this more and what might help. ⏰ Click here for the resource: https://loom.ly/Emp0Gs0
Carers Allowance Call for Evidence: Last week, a six week call for evidence was opened to gather views on Carers Allowance. To read more on this, please head to our website. You can also find the consultation here too: https://loom.ly/KZWIG0Q
DSEngage Live | Dance Class 💃🕺 Join people who have Down’s syndrome from all over the country to Wake up and dance with DanceSyndrome via Zoom! Next Session: (tomorrow) Thursday 16 July 2026. Time: 9.30 – 10.15am. Please sign up here: https://loom.ly/fEn2yVs
The Down’s Syndrome Association is responding to the publication of the latest Learning from Lives and Deaths (LeDeR) report 2024, published on 13 July 2026. Read the full response on our website: https://loom.ly/LP5hhRk
Understanding Behaviour Webinar Part 1 – an introduction. Many behaviours that we see are very helpful but sometimes cause concern. In this webinar we talk about some of them. If you would like to attend the next one in October you can register by clicking this link: https://loom.ly/_qQvgJk
Have your say about health and social care services – Northern Ireland (NHSCT area only) Your experience matters. This short survey will help shape future health & social care services: https://loom.ly/K6P7258 Please take part and share with others locally. The survey closes 31 July 2026.
Stories can be helpful in teaching new skills or preparing someone for a situation. To learn more about how to write a story, see our resource at the link below. Link: https://www.downs-syndrome.org.uk/wp-content/uploads/2025/05/Using-Stories_FINAL-VERSION_16.05.25.pdf
The DSA have responded to the Timms Review Interim Report on the Personal Independence Payment System. Please read the full response on our website: https://loom.ly/EcpNYag
Can you help with this study about pain in young adults who have Down's syndrome? If you would like to take part/know someone who would, please scan the QR code or contact the email provided on the poster for more information. *The text and poster is provided by the research team.
People communicate through their behaviour and it is important to give everyone ways to let others know what they want/need/like/dislike. This resource contains visual supports that can be cut out and used to help with communication. You can access it here: https://loom.ly/vKmWZvM
DSEngage LIVE | Evening Disco 🪩 Switch on your disco lights, wear your favourite disco outfit and lets get dancing! Who's joining us? Next Session: Tuesday 7 July 2026. Time: 7.00 – 8.00pm. Please sign up here: https://loom.ly/wFaWeos
Did you know that we have a page on our website dedicated to understanding behaviour? On there you can find many helpful resources. Click here to see more: https://www.downs-syndrome.org.uk/about-downs-syndrome/lifes-journey/understanding-behaviour/
Support this open letter to the Prime Minister: ✅ A new national programme and strategy for people with learning disabilities ✅ Action to tackle health inequalities ✅ Accountability for delivering change ✉️ Easy read: https://tinyurl.com/mtaknxna ✍️ Sign the letter: https://tinyurl.com/yv2ean8a
Focus group: Experiences of EOTAS (Education Other Than At School) Wednesday 15 July 2026 | 6.30-8pm | FREE We are holding a small online focus group for parents and carers of children and young people who have an EOTAS package. Places are limited - please register here: https://loom.ly/UuE4Tso
Coeliac disease is an autoimmune condition, and it is more common in people who have Down’s syndrome. Please see our updated resource for more information on what it is, how it is diagnosed and managing a gluten free diet: https://loom.ly/IYaLBl4
We have released a statement on 'Transition and Racial Inequity in EHCP Access' over on our website. Please give it a read to find out the DSA's views on this topic: https://www.downs-syndrome.org.uk/news/news-research/policy-campaigns/dsa-statement-on-transition-and-racial-inequity-in-ehcp-access/
The Community Transport Association is inviting parents and carers to take part in its survey, funded by Motability Foundation. Survey respondents can enter a prize draw to win one of three £250 high street vouchers. The deadline for responses is 30 June! Have your say: https://loom.ly/cOs1Q4Y
The hot weather is having an impact on us all & it's important to keep safety in mind especially for people who have Down's syndrome, who can be at a higher risk during extreme heat. Click here for some advice & useful resources on keeping cool & safe 👉 https://loom.ly/UEwdus8
My Perspective is an international photographic competition for people who have Down’s syndrome! Entries close in a couple of days - don't miss out! 📷 The competition closes on Friday 26 June at 5pm GMT. Get those entries in now! Please enter by clicking this link: https://loom.ly/Nag352o
Timms Review Workshop | Share your views on PIP with the Timms Review. Join our workshop: Thursday 2 July 2026 | 6-8.30pm | FREE Please register here before spaces fill up: https://loom.ly/NCGwejk
Sensory processing Awareness | Friday 3 July 2026 | 1-2pm | Free This 60-minute online webinar for parents and practitioners will provide information on sensory processing in children who have Down’s syndrome. Please sign up here: https://loom.ly/YxQgxGk
The Government has launched a new consultation asking for views on how employment rights should better support unpaid carers. If you are a parent or carer, please consider responding. Share your experience – it matters. Deadline: 1 September 2026. For information see: https://loom.ly/5B_9gQg
Did you know that skin conditions are more common in people who have Down’s syndrome? Our resource includes visual images of the more common conditions and suggests possible treatments. Check it out here: https://loom.ly/jth71iE
DSEngage Live | Weekly Workout 💪 Get your week off to a great start with a fun and enjoyable live workout - the live workouts can be easily adapted depending on your fitness level. Next Session: Monday 22 June 2026. Time: 4 – 4.45pm. Please book here: https://loom.ly/2UAgQ6Q
To celebrate the importance of Learning Disability Week this week, please join us for this online session: 'Do You See Me? Experts by experience talking to you about the DSA Listen Include Respect Project.' Friday 19 June 2026 | 2.15-3.15pm | FREE Sign up here: https://loom.ly/ArBjqPg
We, the Down's Syndrome Association, believe there is a need for accessible news in the UK. We signed a joint open letter to Lisa Nandy MP, Secretary of State for Culture, Media and Sport. The letter is in Easy Read. Please read it here: https://loom.ly/_Bi9J6M
In this article by Dr Liz Marder she explains the different immunisations and why they are important as well as a useful schedule of when they should happen. Resource link here: https://www.downs-syndrome.org.uk/wp-content/uploads/2024/03/Immunisation-March-2024-FINAL-.pdf
Researchers from the University of Manchester are looking for adults who have Down’s syndrome between the ages of 18-50 to take part in a study about testing people’s hearing using a test called Auditory Steady State Response or ASSR. Click here to find out more/take part: https://loom.ly/aeKlRn8
'How is menstruation experienced by adolescents with Down syndrome in the UK?' To read about the findings from this research study, click here: https://loom.ly/mBEZOO4 *Please note that we support the aims of this study but any text describing/advertising it is provided by the research team.
We also have an easy read resource which may be helpful for people who have Down’s syndrome to understand their thyroid condition. Click here to read it: https://www.downs-syndrome.org.uk/wp-content/uploads/2020/06/EasyRead_Thyroid_KP_2.pdf