Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD. 📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u... #HuntingtonsDisease #RareDisease

📢 EHDN's Occupational Therapy WG has published updated Clinical Tips for Huntington's Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) — bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...

📢 Invite: HEATED Task Force meeting at EHDN Clinical Research Congress (Kraków, 22-24 Oct). All welcome - people with HD, families, researchers, industry & more. More info: ehdn.org/ehdn-heated-... Congress: ehdn.org/ehdn2026/ Registration closes 31 July! #HuntingtonsDisease

Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Gianni (University of Leicester). #HuntingtonsDisease #ClinicalResearch

EHDN's Executive Committee has issued a statement on Roche's discontinuation of GENERATION HD2 and POINT-HD. Disappointing news, but tominersen proved huntingtin lowering is achievable - and other approaches remain in development. Full statement: ehdn.org/wp-content/u... #HuntingtonsDisease

Congratulations to Prof. Jean-Marc Burgunder, honoured with a European Academy of Neurology Lifetime Fellowship at #EAN2026 in Geneva! A former EHDN Chair & valued Think Tank member, he's dedicated his career to neurogenetics and compassionate care for families impacted by HD. #HuntingtonsDisease

📰 EHDN News – July (Issue 58) is now online! Highlights: the 100th Lesley Jones Seed Fund awarded (€3M+ in research funding since launch), the Seed Fund Impact Study, an interview with Charlotte Spearing, plus EHDN Elections 2026 news. Read here: ehdn.org/ehdn-newslet... #HuntingtonsDisease #EHDN

**Bring your research to Kraków!** The call for abstracts is open for the EHDN Clinical Research Congress, Kraków, 22–24 October 2026. 🗓️ Submit 1–30 June 2026: na.eventscloud.com/eSites/87596... Questions: krakow2026@ehdn.org #HuntingtonsDisease #EHDN2026 #ClinicalResearch #HDCommunity

Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u... #HuntingtonsDisease #Research

The EHDN Platform Meeting 𝐮𝐧𝐢𝐐𝐮𝐫𝐞 𝐭𝐨𝐩𝐥𝐢𝐧𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬: 𝐮𝐧𝐩𝐚𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐨𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐬𝐨 𝐟𝐚𝐫 took place on 18 November. We are very grateful to our amazing speakers and panellists. Catch up by watching the recording: www.youtube.com/watch?v=wKj1... & reading the full report: ehdn.org/wp-content/u...

The 56th issue of EHDN News is now online: ehdn.org/wp-content/u... Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!

Our 55th issue opens with a tribute to our much-loved and sadly missed colleague, Tim McLean. Highlights include a call to action from EHDN’s HEATED task force, clinical trial updates, and an interview with Daniel Claassen, Chief Executive Officer @ Huntington Study Group: ehdn.org/wp-content/u...

It is with very heavy hearts that we share the sad news that Tim McLean, our wonderful colleague and dear friend, passed away on 31 March 2025: ehdn.org/in-memoriam-...

Our latest newsletter is available online: ehdn.org/wp-content/u... Highlights include an interview with EHDN chair Patrick Weydt and insights into the latest work of the Imaging Working Group. #HuntingtonsDisease #HDCommunity

HD Gratitude Day 2025 takes place 23 March, 17:00 CET/16:00 GMT/ 12:00 PM EST. This 3rd annual meeting of thanks and celebration will be hosted by Jimmy Pollard with live presentations from Venezuela, USA & Europe. All are welcome to join the Zoom meeting here: us06web.zoom.us/j/8421059089...

The November issue of EHDN News is online! Highlights include coverage of EHDN & Enroll-HD 2024 and an interview with the amazing Anne Rosser. #HuntingtonsDisease #HDCommunity #RareDisease #ClinicalResearch PM or email newsletter@euro-hd.net with your comments and views!