It's ME(Jaime)

@exceedhergrasp1

Scientific Director, #MEAction Affiliations: Stanford Genome, Université de Montréal TIME100 Health #ME, #EDS, #POTS, #LongCOVID Views my own

4.203 Folgt16.808 Follower26.299 Posts

Bluesky

Ist das dein Profil?Übernimm es — dann gehört dir exceedhergrasp1.dirty.social.Profil übernehmen

It's ME(Jaime)@exceedhergrasp1· 1d

LOVE IT.

The exact post above, but demonstrating that there is a 2/2 after the post.

It's ME(Jaime)@exceedhergrasp1· 1d

Shared in reference to the whole "Spiderman discovered part of acting was receiving the script beforehand, and shared it with his friends." Deserves to be shared with alt text so everyone can enjoy:

a pic of Tim Allen and Alan Rickman on the set of Galaxy Quest, both in costume, with the caption:
Galaxy Quest director Dean Parisot recalled a time Tim Allen was unsettled by a scene he was performing:

"I turned back and Tim is just completely emotional;
heart-wrenching, actually. He says, 'Yeah, I don't like these feelings I'm having; I'd like to go back to the trailer.' I said, 'Okay, fine.' And Alan Rickman said, 'Oh my God, I think he just experienced acting.'"

It's ME(Jaime)@exceedhergrasp1· 21d

Ted Lasso is coming back, and this line about the new co-showrunner made me laugh for a minute straight. So universal 😭

The first week of production, Burditt says he got an early morning call from Lawrence, whose Doozer Productions was still involved with the show. “He tried to give me a lowdown of what to be prepared for. He says, ‘Here’s how to deal with the show, here’s how to deal with Jason. …’ I think we spoke for about 20 minutes and then he said, ‘We should continue to have these conversations every one or two weeks,’ ” he recounts, then adds: “I have not talked to him since.”

It's ME(Jaime)@exceedhergrasp1· 22d

Oh, no. Word is, AHRQ grants are being canceled en masse. 🧪 Source: ahsituationreport.substack.com/p/ahrq-has-b...

While our assessment is ongoing, several patterns have already emerged:

AcademyHealth has heard from more than 45 researchers and institutions that have received cancellation notices and additional reports continue to arrive.

The notices span multiple types of awards, including research grants, career development awards, institutional training grants, and research infrastructure programs.

Many recipients received nearly identical letters despite supporting very different types of research.

Several affected projects directly address priorities AHRQ itself has publicly identified, including patient safety, antibiotic resistance, digital health, and reducing health disparities.

Based on the information available today, these actions affect non-competing continuation funding that Congress has already appropriated.

It's ME(Jaime)@exceedhergrasp1· 22d

We are ready to launch the Emergency Department Survey! Thanks to all your help-- and a few grants-- we are ready to go! If you're registered with #MEAction, an email with a link to the survey should be in your inbox very soon! Also, check out our social solicitation for the survey below. 🧵

Emergency Department Guidelines
With your help, the Emergency Department Project is now just $5k from FULLY FUNDED!
Underneath is a stacked bar graph, showing the proportion of the grant paid for by Whittemore Peterson, the 15k match, the amount of donations we've received that aren't the grant or the match, that we met the $15k match with individual donations, the new Mayo Clinic General Internal Medicine CME Education Committee Seed Grant, a HUGE chunk due to generous individual donors and a sliver left to go. Over the stacked bar graph it says, "Prepare for launch..."

On the right is a person standing at the top of a tower holding a triumphal flag! (We did it, folks! We can launch the study now!)

It's ME(Jaime)@exceedhergrasp1· Jul 10

This me

An image of Ryoga Hibiki, a Rumiko Takahashi character who is perpetually lost, and I mean LOST. "Excuse me, is this Shinjuku?" No, Ryoga. This is Bsky.

It's ME(Jaime)@exceedhergrasp1· Jul 10

Then there's a slide with code counts-- how many times did each code appear, and what does that mean in context? The best way to do this is write a paragraph where the codes are embedded in your thinking, like this:

80.What is the difference between pacing and pushing until you crash and then resting until you recover (“boom and bust”)?

Pacing means your energy is more consistent (15)
The goal is to avoid crashing (15), push-crash cycles (4), and symptom worsening (8)
Pushing through symptoms leads to deterioration (13); but pacing over a period of time increases your baseline/decreases crashes (7)
Pacing means you can accomplish more (10) and make the best use of your energy and ability (9)
Sometimes, though, you’ll “push and crash” on purpose, to accomplish something important or something you deeply value (9) or ADLs you must do (1); otherwise, don’t push through symptoms (3) and remember: feeling well doesn’t necessarily mean you can keep going indefinitely (1).
It can be hard to tell pacing apart from boom-bust at first, because many people don’t know to rest/are encouraged to be active; they don’t realize they’re in rolling PEM (1).

It's ME(Jaime)@exceedhergrasp1· Jul 9

Something like this lol

Says pacing on the left and boom-bust on the right. Underneath pacing, it says, "I can do stuff, now". "I can do a little less stuff" next to a wavy, but relatively consistent line. Underneath boom-bust, there is something with spikes on a graph. At the top, it says "I can do stuff now". At the bottom, it says "all I can do is suffer right now". There's a little stick figure looking up at the boom-bust graph, saying, "this one looks like an EKG I would not want"

It's ME(Jaime)@exceedhergrasp1· Jul 6

Ah, another good sign

A page not found from the National Cancer Institute, Division of Cancer Epidemiology & Genetics. The page was on neurodiversity, presumably removed because it has the word "diversity" in it.

It's ME(Jaime)@exceedhergrasp1· Jul 6

Nice! We did this work through the Society to Improve Diagnosis in Medicine (SIDM) grant with Mayo Clinic researchers. We created a diagnostic and treatment algorithm at Mayo, and found its introduction was associated w/improved outcomes in those with #MECFS. #MedSky 🧪 www.mdpi.com/1660-4601/23...

Well done, Jaime!
With 16 new reads, your article was the most read research item from your department last week
Achieved on July 5, 2026
Article: Improving Diagnostic Accuracy of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Through a Point-of-Care Clinical Algorithm
International Journal of Environmental Research and Public Health (IJERPH)

It's ME(Jaime)@exceedhergrasp1· Jul 2

I can't believe it, but THIS is where I actually know Scott Atlas from. What happened to him? He was doing good work into the mid-2010s It seems like he fell headfirst down an alt-right hole. pubmed.ncbi.nlm.nih.gov/25353054/

Radiology

. 2015 Feb;274(2):517-26.
doi: 10.1148/radiol.14141079. Epub 2014 Oct 29.
Right arcuate fasciculus abnormality in chronic fatigue syndrome
Michael M Zeineh 1 , James Kang, Scott W Atlas, Mira M Raman, Allan L Reiss, Jane L Norris, Ian Valencia, Jose G Montoya

It's ME(Jaime)@exceedhergrasp1· Jul 2

Very much this:

Skinner "no it is the children who are wrong" meme, but instead, it starts with "Could it be that I'm just not as smart as I think I am?" followed by, "No, it is the experts who are wrong."

It's ME(Jaime)@exceedhergrasp1· Jun 27

🙃 The shrimp discourse has escaped containment Huffpost doing callouts now, @katmabu.bsky.social?!

Popular Today from Huffington Post:

How Much Shrimp is Too Much Shrimp?
Nutrition Experts Have A Number in Mind.

Shrimp can be a nutritious food, but certain individuals may want to be more mindful of their intake. Here's why.

It's ME(Jaime)@exceedhergrasp1· Jun 27

Well, I'll take it.

Britmonkey's 2020s political compass test.

I scored 77% woke (vs 23% chud)
41% techbro (vs 59% neoluddite)
48% hopepilled (vs 52% doomer)
89% Davos (11% Dubai)

YOUR CLOSEST MATCH:

Zohran Mamdani

With a pic of Mamdani grinning

Mayor of NYC (2026-present)

It's ME(Jaime)@exceedhergrasp1· Jun 23

The most Bsky thing I've ever seen

Trending:

1. Philadelphia Sports
2. Socialism
3. Mbappe
4. World Cup
5. AIPAC Debate

It's ME(Jaime)@exceedhergrasp1· Jun 18

BLUESKY LICENSE - BLUESKY SOCIAL (Bsky butterfly)
Your handle, your identity

Name: It's ME (Jaime)
@exceedhergrasp1.bsky.social
License Class: Bluesky Veteran

Web of Trust (5 stars)
Mutual follows — people you follow who also follow you back.
Engagement (5 stars)
Total likes + reposts + replies your recent posts received.
Generosity (5 stars)
Total likes you've given to others.
Velocity (5 stars)
Posts per day (total posts ÷ account age).
Streak (4 stars)
Your longest run of consecutive days with at least one post.
Veteran (4 stars)
How long your account has existed.
Mileage (25335)
Your total number of posts — like an odometer.
Peak (UTC) (13-15 UTC)
The 2-hour window, in UTC, when you post the most.

Fly the open social web.

SEE YOU IN THE SKY.

It's ME(Jaime)@exceedhergrasp1· Jun 18

Added! 💪

The amount raised on funraise (minus the Whittemore Peterson grant): $30,308.81, with a $55k goal

It's ME(Jaime)@exceedhergrasp1· Jun 18

Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic! We're that much closer to funding the entire project, thanks to hard work from our team and all of your support!

Emergency Department Guidelines
We were awarded a medical education seed grant for $6,500!
Underneath is a stacked bar graph, showing the proportion of the grant paid for by Whittemore Peterson, the 15k match, the amount of donations we've received that aren't the grant or the match, that we met the $15k match with individual donations, the new Mayo Clinic General Internal Medicine CME Education Committee Seed Grant, and a chonk we still need to raise.

It's ME(Jaime)@exceedhergrasp1· Jun 17

When you're not personally monstrous, it's hard to imagine anyone means their genocidal rhetoric literally. But anyone who speaks longingly of genocide is in earnest.

One of the greatest challenges in combatting fascism, both in the early-to-mid-twentieth century and today, is getting comfortable, middle-class, politically moderate people to understand that its adherents *actually mean what they are saying*.

It's ME(Jaime)@exceedhergrasp1· Jun 15

With alt text, because this is the most beautiful thing I've read all month:

Bob Dylan, 85

The best thing

The best thing about being 80 is that you outlive the clocks that have been chasing you. It's freedom from that lie that anything was ever under control. You don't chase the parade anymore. You're an old king from some vanished country. You're harder to program. You're not rushing to become anything and you're not haunted by things that you did. You're haunted by how little of it really mattered in the way you thought it did.

The worst thing

The worst thing about being 80 is that you still want to say yes to everything, but the world moves without asking. The old fire in your heart still tells you to do this and that, but your body says we already did it. Also, nothing surprises you. It sounds like a luxury but it's not, and also you've run out of illusions. People treat you like either you've solved something or you've lost something, and you haven't. You see life repeating itself everywhere.

The really worst part about being 80 is that you find, at last, you've got an understanding of something that might have altered everything in teh past, had it come at a time when something could still be altered. When you're young you think that time moves forward. At 80 you know that it doesn't, it stands still. We're the ones that move.

It's ME(Jaime)@exceedhergrasp1· Jun 14

Getting ready for the #MillionsMissing recap community meeting starting now! #MEAction

A picture of me, a white woman with long brown hair and gray glasses, wearing headphones

It's ME(Jaime)@exceedhergrasp1· Jun 14

The "Yankee Doodle Burger Barn" from Ted Lasso. Ted, a middle-aged white guy with a bushy mustache, is holding a bottle of barbecue sauce. In the forefront are those old school restaurant bottles of ketchup, mustard, and (maybe?) mayo. On the left is a pile of onion rings so high that it reaches Ted's shoulder. The restaurant had, like, 2.5 stars on Yelp. If you don't know the show, it takes place in the UK

It's ME(Jaime)@exceedhergrasp1· Jun 13

Demon-Haunted World reference ftw

Yell in a War (user @jelenawoehr) says: "It's wild to me how everyone has roughly the same "worth is ending" feeling right now but some people feel that way because of fascism and climate change while others feel that way, with equal intensity, because of drag queens at libraries and singular they/them pronouns."

User quasi-normalcy replies:

"Everyone knows that things aren't working anymore, it's just that if you have a scientific materialist understanding of the world you can actually know *why* it's not working, whereas if you have a demon-haunted view of the world, your impulse is going to be to try to sacrifice someone to appease the gods."

It's ME(Jaime)@exceedhergrasp1· Jun 12

I love malapropisms like this

dum10.bsky.social replies to someone, "Don't falter yourself."

Clearly they meant, "don't flatter yourself," but by urging someone not to falter, they've conveyed the opposite message to that which they presumably intended.

It's ME(Jaime)@exceedhergrasp1· Jun 10

Just a li'l update

It's ME(Jaime)@exceedhergrasp1· Jun 8

OML no alt text?! here u go

Gwyneth Paltrow and Trae Stephens Discuss: The Future of American Defense.

In which hollywood's most charming wellness mom chats with anduril's cofounder about love, war, God, and her 'very progressive' husband.

There is a rather surreal image set on a very pale grey background. There is some kind of rocket/bomb/WMD kinda thing, all shiny black, about as tall as a person. Gwyneth Paltrow looks like she's dressing for a movie about a women who runs a weapons company 'but woke': a cream, long-sleeved bodysuit with a low v-neck with cream heels and off-white glasses. She appears to be leaning against the WMD with one closed fist, the other hand jauntily perched on her opposite hip.

Genuinely wtf is this

It's ME(Jaime)@exceedhergrasp1· Jun 4

🎶Can't be held responsible for my actions🎶 🫠

Still from the opening of the second season of Crazy Ex Girlfriend. Rebecca, the main character, is on stake in a Rockette's type number with a bunch of women all dressed in short bright pink dresses with bustier tops and huge red hearts strapped to their backs. The line is, "I'm just a girl in love / I can't be held responsible for my actions"

It's ME(Jaime)@exceedhergrasp1· Jun 3

Comedian saying "But I was so caught up in the euphoria of PARTICIPATORY RESEARCH"
Second panel adds, "that for a minute I lived in a world where racism didn't exist"

-- original version is a story about how he was buying apple juice in the grocery store with his (white) partner and getting glared at, and he briefly thought it was because he'd gotten such a good deal on apple juice, only to realize it had probably been racism all along. He was just so caught up in how much awesome apple juice they were getting

It's ME(Jaime)@exceedhergrasp1· Jun 2

It appears as though you created this account solely to leave this comment.

The user showing 58 followers, 25 following, one post-- this one.

It's ME(Jaime)@exceedhergrasp1· Jun 2

oh suuuure, this extremely well-evidenced treatment, just like vaccines-- oh, wait, uh, hang on-- I'm getting that there are no peer-reviewed studies on this with objective measures? none at ALL in this disease space?