MS Sucks 🎗
@itreallydoes
Web Developer #Joomla | Beekeeper | Widow Disabled USMC Vet | Living with #DDD & #MS 📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links ☕️ Buy me a coffee ➜
Mia had a service training session today. After 45 min she snuck away to find a cool, quiet place to nap under the shrubs. I do the same thing when the #MS fatigue hits. Although, I try to avoid the whole crawling under the shrubs part 😆
B-Cell Eviction Day! It was 10° F when I left the house this morning. Usually going out in this temp is a big NOPE for me, but I went with enthusiasm because I’m so over this crap gap.
This is my third round with a staffie. The others were 2-3 years old when I got them so they were a *little* more mellow than this current terrorist 😂
New Year, same symptoms. Same gremlin immune system refusing to read the god damn manual. If you made it to midnight, congrats 🥳. My New Year Eve tradition, like many other days of the year, kicked off around 7PM when I took my meds and crawled under my weighted blanked. #MS still sucks in 2026
Mia’s officially home — 3 months old, cute as hell, and already running the place. She came all the way from Mississippi, thanks to an amazing rescue that literally hopped in a van last night and drove 1037 miles to get her to me.
For this #MSFriday some light reading and coffee. Glad it’s the last day here. Woke up this morning and my immune system choose vilonece. Ready to go back home to my own bed.
I bet I've hidden more dead bodies than you have. New Blog Post: When #MS becomes your crappy boss. Read ⮕ mssucks.co/j
20 liters of bee syrup a day so far this week. My bees = sugar junkies. My immune system = myelin junkie. Nobody paces themselves at this house 😆 🐝 #MSSucks
Na. I’m an amateur, with too many hobbies 🤓 But I did stay at a Holiday Inn Express. I saved one from drowning in the food. She didn’t want to get off my hand.
I made the bees some food a few days ago. Was empty the next morning and wasn’t sure if they drank it all or something else got it. So I refilled it, next AM empty. Refilled this morn and spectated to see what was getting it. Barely 40 minutes and it was empty. I think I started a bee crack den.
lol I do have a Murphy bed. However I have a fresh 44x96x60 spot that’s a love mix of red and yellow clay with some shale. 😂😂
LOL There’s probably around 14k in there. I started a few weeks late into the season. The plan is not to take any honey until next spring, letting them build up their colony which would probably be around 20-25k and have enough honey for themselves stored for winter.
Infusion day. One of two days a year I get to hit back. If my immune system’s gonna freelance and ignore the manual, I’m taking away one of its favorite toys. No B-Cells for you, ya little shit.
Hand sanitizer…. Yeah hand sanitizer. That’s my story and I’m sticking to it.
Being a "Professional Patient" sucks. Getting paid for it, might suck a little less. Do you or someone you care for have a chronic illness? This survey company pays ~$120/hr for surveys about your conditions. Yes, it's real. Jan - Apr I've had 370 deposited. Free to sign up. ➡️ mssucks.co/survey
The favorite child acting like she pays for the gas to take her for a pedicure. Meanwhile, I’m over here driving Miss Barksy
Hope you feel better tomorrow. The weather here is messing me up. Got my cuddle buddy too.
lol no, it’s the title of the journal I created. If you’re into seeing my only fans here’s what I got…