Torie Robinson
@torierobinson
🎬 Epilepsy Sparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | PPI Lead | #Epilepsy & #MentalHealth Research fiend | All views my own
🤔 Why is it that drugs don't control seizures in 30% of people with #epilepsy? On the Epilepsy Sparks Insights podcast, Graeme Sills, PhD 🇬🇧, shares his work and theories into this problem and how we - pharma, researchers, and clinicians - need to look "outside the box"! 👇🏻 🎬 youtu.be/0xhPeVjJqQA
👥 Attending a conference even if only to catch up with an international colleague face to face is 100% worth it!! It's been a few years now that Jennifer Bethell and I have worked together on the iNeuron project - with multiple colleagues from around Canada! 🇨🇦 #basicscience #alzheimers #epilepsy
😀 Who knew one could have such fun talking about immune disorders causing epilepsy! In this week's Epilepsy Sparks Insights podcast 🎬, Prof. Colin Doherty 🇮🇪 shares his theories about refractory epilepsies being immune disorders! Watch here: 🎬 youtu.be/Gxmuot0Is6o 1/ #epilepsy #immunotherapy
🐄 The science behind the #ketogenicdiet is simple, right? Well, sorry (for myself as well as others)... not so much. 😆 In this week's podcast 🎬, Dr. Manny Bagary 🤩🇬🇧 explains all about the ketogenic process and the amazing impact of altering one's ketosis 👇🏻! 🎬 youtu.be/aVXUMjfvbJg 1/
It's Reetta Kälviäinen 🇫🇮: "Beyond the Myoclonus: Recognizing the Clinical Face of PMEs (Progressive Myoclonic Epilepsy) EPM1 epilepsy" Reetta shared how the best epilepsy research is done with patients and families. And not just with the usual "awareness" activities it's research collaboration. 1/
Amazing panel discussion and notes: What defines a DEE? How "severe" must symptoms be? Is it a matter of association of clinical and EEG findings above a certain aetiogy? Is it a pathophysiological rather than a clinical concept? Is it not a static but dynamic concept? 1/
😀 Second day of the #DICE2026 epilepsy conference in Denmark! First speakers are: 〰️ Nicola Specchio 🇮🇹: "DEE: Classification and Current Concepts" 〰️ Lieven Lagae 🇧🇪: "Challenges in the Current Classification of DEEs" 1/2
At the London Marathon supporting Epilepsy Action! #epilepsy #londonmarathon2026
Many people's brain scans look normal - despite them having seizures. 🧠⚡️ Christos Papadelis 🤩 talks about combining MEG with high-density EEG & AI to identify where seizures start!👇🏻 🎬 youtu.be/KQGjwVdYUBs This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy
In prep for the UCB EpilepSEE conference in Chicago! We start tomorrow, with some incredible global collaborators - the start of a new project to improve the lives of those affected by epilepsy. Global experts inc. Prof. Reetta Kalviainen, Landis Wiedner, Alison Kukla, & Ivana Garcia. #epilepsy
Thank you to the Epilepsy Foundation 🧠🇺🇸 for the Research Ambassador Keynote Speaker award. I'm honoured. Not possible without EF leaders Jacqueline French, Caitlin Grzeskowiak, Renisha Jones, and Eva Childers. More is coming. Stay tuned y'all.... #epilepsy #neurology
Thank you to such a cool audience for being with me for a 55min keynote talk about how they can become involved/leaders in #epilepsy research - using their Epilepsy Experience Expertise. Thank you to Prof. Jacqueline French and Caitlin Grzeskowiak of the Epilepsy Foundation for the invitation.
Tremendous presentation about medtech devices used to help try and control epileptic seizures (they often have other benefits too though) - by star scientist Benjamin H Brinkmann PhD, FACNS FAES - at the Epilepsy Foundation Research Ambassador Program 🇺🇸! #epilepsy #medtech #eeg #neurology
See you soon Epilepsy Foundation of America - in Minneapolis 🇺🇸. I'll be sharing some pics of my talks - and those of others - over the next few days. Beautiful Delta Air Lines A330-900 LHR-MSP. ✈️ #epilepsy
🥳 New, fun podcast episode! Epilepsy; it's just not sexy, is it?! Hear how we need to improve education and marketing for epilepsy so that we can get greater acceptance and funding for research! All with intellectual disability nurse Jay Price 🤩🇬🇧! 👇🏻 🎬 youtu.be/-pMjMXnYKKM #epilepsy #purpleday
Want to hear something exciting? 🥳 In this week's podcast, @konradwagstyl.bsky.social shares how he is using AI & datasets to identify previously unidentifyable (on MRI) brain lesions!! 🧠 Watch! 👇🏻 youtu.be/3qj5If0RdqM Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy #MRI
🥳 Speaking to MedTech about #epilepsy, #depression, #Parkinsons & #Alzheimers and our #PPIE work at the international Advanced Research & Invention Agency (ARIA) neurotech summit with tremendous colleagues Jon Nelson, Kuhan Pushparatnam, and Trevor Salomon 🤩🤩🤩! At the National Space Centre! 🚀
Podcast! Mental health illnesses are symptoms of epilepsy and they can even precede seizure onset! 😯 Hear from global lead epileptologist Dr. Andres Kanner 🤩 🇺🇸 Watch/listen👇🏻 🎬 youtu.be/2BZaqboYIpQ This episode is presented in partnership with EASEE® by Precisis GmbH. #epilepsy #mentalhealth #adhd
Addressing inequalities in access to epilepsy care! It’s the Epilepsy Sparks Insights podcast with Prof. Nicola Specchio 🤩🇮🇹 who speaks of: • delays to diagnosis • earlier interventions • improve standards • precision medicine, biomarkers & neuroimaging Watch here: youtu.be/eWXWNjL2FGw #epilepsy
New paper “Epilepsy and mental health disorders: current challenges and potential solutions”. “Seizure control alone doesn’t equal quality of life...” Writing about this isn’t easy when you draw on lived experience, but it’s worth it. 👇🏻 www.cambridge.org/core/journal... #epilepsy #mentalhealrth
🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?! Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻 🎬 youtu.be/rBpI_-daWjw
🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸! Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹! Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re: 〰️ Metabolic epilepsies & the future 〰️ Patients we can’t yet help 😞 〰️ Advocacy, gene therapy, SUDEP & mental health Listen/watch, here 👇🏻! 🎙️ shorturl.at/LbjyF 🎬 shorturl.at/z7VzU #epilepsy #neurology #podcast
The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were: - Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and; - The Sacrifices & Benefits of a Hemispherectomy”. Check them out here 👇🏻! youtu.be/u6Sjsh5TuDo
😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻 🎙️ Podcast shorturl.at/5entK 🎬 YouTube shorturl.at/ghltc
Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹! And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand! #epilepsy #neurology #IEC2025