A Chronic Voice
@achronicvoice
I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
"There is also an increased risk of #gastrointestinal #bleeding and peptic ulcers with #NSAIDs due to the mechanisms of the #medication ..which is also the biggest concern my #rheumatologist has with them.": buff.ly/ptzTVjP #AntiphospholipidSyndrome #RareDisease #MedSky #medications #BloodClots
“If I #FlareUp despite my best efforts to thwart it, I give in to it! I don’t try to fight against it..When I have to stop, I stop..I decided long ago to not try to prove anything to anyone..It is a setup for misery. – Lynn.": buff.ly/yuGbCmT #ChronicPain #SelfCare #ChronicIllness #disability
"After my #Lupus #diagnosis, my markers for other #AutoimmuneDiseases started to stack up 1 at a time, year after year. I was diagnosed with #SjögrensDisease, #epilepsy, migraines, uterine polyps & other health conditions.": buff.ly/6pD7oqB #MondayBlogs #ChronicIllness #NEisVoid #disability
"Your body becomes a filthy jail cell & you can’t go very far. It feels like a life sentence for an innocent victim. But if this is for the rest of my life, then I have no #choice but to search for #joy within it.": buff.ly/3cpwogC #ChronicPain #ChronicIllness #MondayBlogs #NEisVoid #MentalHealth
"That good day might not be now..but what u have to do is just to get thru the day without overanalysing it & to treat yourself with #kindness. Give yourself a break—your #body wasn’t what it was yesterday & isn’t what it will be tomorrow.": buff.ly/beVT8d7 #MondayBlogs #MentalHealth #ChronicPain
“I don't bear #grudges toward [my #friends ]..Yet, sometimes I wish they would just say 'hi'..These are all good, kind-hearted, lovely #people. But life has a way of keeping even these angels overwhelmed — perhaps even more so”: buff.ly/PBqEQvt #MondayBlogs #ChronicIllness #NEisVoid #lonely
“'How #lucky am I to have something that makes saying #goodbye so hard.' ― A. A. Milne (from The Complete Tales of #WinnieThePooh") — That's how I think abt my #dog a lot. So I kiss his furry little & tell him I #love him every day. Have a great week ahead! buff.ly/fg68p7X #friendship #companions
"We are like different types of #flowers. Each of them needs the right kind of environment to mature into its full glory. If we are winter flowers trying to grow in a summer field, then of course we’re not going to #thrive, much less bloom.": buff.ly/VJTH5q5 #ChronicIllness #LifeLessons #disabled
"I had experienced a myriad of mysterious symptoms after being in a car #accident when I was 18..incl severe #pain, #anaphylaxis & #nausea. I knew I was #sick, but..no one was able to pinpoint what was wrong [for over a year].": buff.ly/KF8e8gb by @juliametraux.bsky.social #dysmorphic #NEisVoid
"Setting #work aside, which I desperately need & is the next #priority after my #health, my days have melded into an abstract, and have become a rinse-repeat procedure of bed, computer, some reading and poor sleep.": buff.ly/5IgZR9Y #ChronicIllness #disability #NEisVoid #ChronicPain #painsomnia
"The kind of #work I would like to speak about today is around a manual theme. Here are some #abilities I possess but never stopped to consider or #appreciate, until I had those #privileges stripped away from me.": buff.ly/Xsyqny7 #gratitude #ChronicIllness #disability #grateful #health #NEisVoid
"“No matter how big your house is, how recent your car is, or how big your bank account is. Our graves will always be the same size. Stay #humble.” – Unknown" — A little #SelfReminder to stay humble, remember what matters & to #NeverGiveUp on my #dreams: buff.ly/zcAKDaS #BeKind #weekend #spoonie
"My #CRPS brought clarity..It completely benched me & around me rallied clients & #friends, they loved me for me & what I could bring. Those who didn’t, left & it was hard at the time but I am so #grateful for the #balance I have now.": buff.ly/ySTmv8D #ChronicPain #ChronicIllness #disabilities
"Another method Thich Nhat Hanh suggests is to #smile for the sake of smiling, even if you don’t feel like it. This helps to #relax the facial muscles, so the act in itself can have a good effect on us as well.": buff.ly/ju0ZjfJ #relaxation #StressManagement #ChronicPain #MentalHealth #mindfulness
" #AntiphospholipidSyndrome is dangerous because it is an #InvisibleIllness ..It may not present with any pain symptoms, but when it strikes, it goes in for the kill. This was my fatal mistake as a teenager.": buff.ly/N0FIy0V #ChronicPain #ChronicIllness #RareDisease #BloodClot #DVT #BloodDisorder
"Is it written by an established #medical org or professional with the relevant #qualifications? Has the article been properly edited? Did they cite their sources? Is the domain a reliable one? R there other..med articles supporting the listed #facts?": buff.ly/RmxSt2k #FactCheck #HealthEducation
"A raised #ToiletSeat is useful for anyone with #ChronicPain ; simple movement such as standing & sitting hurts, when you live with #ChronicIllness. It is extra useful right after #KneeSurgery, as you won’t be able to bend your #knees much.": buff.ly/luBhSDA #disability #accessibility #accessible
"I was in a daze, and the next couple of months went by in a haze. Thrown around from doctor to #doctor, it felt like no one wanted me in their care, due to my complex #medical history.": buff.ly/gLMWVPi #MitralValveProlapse #cardiology #NEisVoid #AntiphospholipidSyndrome #HeartValveDisease
"In a bid to remove as many #obstacles along my path as possible, I need to be careful of not becoming my own biggest hindrance. It is a constant process of learning how to take down these self-erected barriers of #guilt & #blame.": buff.ly/mFEN0Ay #ChronicIllness #disabled #NEisVoid #spoonie
"But when both #PatellaTendons have ruptured and it’s impossible to stand or even lift your legs, then one has no choice but to let the #muscles atrophy, in exchange for proper tendon #recovery.": buff.ly/N4bdsJt #KneeInjury #disability #lupus #KneeSurgery #orthopedic #BoneHealth #RareDisease
" You may lose a few battles, but u can still win this war. You can even fold your cards & give in to #depression for a round or 2, when it is obvious that playing a drawn out game with it will only end in bigger losses." buff.ly/Ism7kcK #SelfCare #ChronicPain #MondayBlogs #MentalHealth #healing
"Your rehearsed permutations for the #future reduce with the presentation of every new problem. But so do the new #possibilities that open up. The future is not a dead thing; it is not even real.": buff.ly/v6PKDB1 #MondayBlogs #perspective #ChronicIllness #disability #hope #MentalHealth #loss
"Whilst thought dumping or #ExpressiveWriting don’t remove the worries and #anxiety in my head entirely, it did help me to move on to the next useful thought. It’s a bit like #ProblemSolving, but in black and white.": buff.ly/9jKDvgA #ChronicPain #MondayBlogs #recovering #surgery #StuckInBed
"I mean, it’s just one #date over coffee or dinner. At worst, you waste some time & discover that you’re incompatible. The reasons may not even be related to #ChronicIllness ..At best, you find your special person.": buff.ly/K9mtfi5 #MondayBlogs #disabled #dating #InvisibleIllness #relationship
"Your bottle of concentrated peppermint essential oil has saved a drunk friend or two from puking." - And more #ChronicPain #memes: buff.ly/ih5AFp3 #spoonie #nausea #nauseous #Migraine #PainManagements #FunnyMeme #ChronicIllness #ChronicLife
"what has been your most #creative project to date? Remember that #creativity doesn’t only exist in the realm of #art; it can even exist in the form of code, game strategy, home organisation & more!" — Get the #July #journaling prompts: buff.ly/HTLs3Cf #WritingCommunity #MentalHealth #ChronicPain
"Everything can feel meaningless when pain is all-consuming. Goals become redundant, even frivolous. All you want is for the pain to stop": buff.ly/00WYTJO #meaning #ChronicPain #ChronicIllness #LifeGoals #NEisVoid #MentalHealth #InvisibleIllness #meaningless #disabled
" #PAIN is the #1 thing that stops me from leaving the house. Things such as the harsh weather like rain, wind & humidity increase my pain tremendously. I’m also often restricted to my house due to operations. – torresnina73": buff.ly/P8ULJ4F #surgeries #ChronicPain #ChronicIllness #disability
"I was 61 & at my peak both physically & professionally, but that changed overnight. This is my journey with #RheumatoidArthritis, & trying to co-exist with an #autoimmune disorder is like a street fight.": buff.ly/L5fPDFn #ChronicIllness #RA #spoonie #ChronicPain #ChronicallyIll #MensHealth