Elly Brosius, MS

@ellybrosius

Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.

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Bluesky

fitness

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Elly Brosius, MS@ellybrosius· 1d

#capillariscopy from @renegaderesearch.bsky.social #InnovationInn nail capillariscope from my PEM day (Sat). Less perfused then before day was my impression. Similar odd shapes. Weird horizontal vessels. @immunofever.bsky.social Good thing had 2 vein repair procedures or could have been worse.

Fingernail bed close up with tortuous capillaries

Instruction card of important features of Healthy Capillaries with examples of problems as observed in the MAESTRO study. Examples include leaking, swelling/inflammation, irregular shape, and low perfusion.

Elly Brosius, MS@ellybrosius· 2d

Here are my RightEye test Pursuits before exertion score of 81, next day in hyper-time post-exertion before PEM score of 73 (PESE), in PEM score is 28! Left eye sliding down, less circular, less consistent, more wiggly with each time around the circle. #InnovationInn @renegaderesearch.bsky.social

RightEye test. Traces of Circles followed by each eye. Even vertically and wiggle size. On target. A little wobbly around each circle.

RightEye test. Traces of Circles followed by each eye. Left eye dropping bellow the target circle a little, wiggle size more, especially on left. A little wobbly around each circle. Day after induce PEM.

RightEye test.Traces of Circles followed by each eye. Left eye dropping well below the target circle, wiggle size larger both eyes, especially on left. Very wobbly around each circle, more on left. 2 Day after induce PEM. Left eye now a diagonal oval.

Elly Brosius, MS@ellybrosius· 4d

Quick pose bcI don’t want to stand still when don’t have to! #OrthostaticIntolerance Superman stance 4 @renegaderesearch.bsky.social #InnovationInn with muscle @MoxyMonitor. Hoping 4 good PEM data SOS bc #millionsmissing need more help, mild- #severeME @meactnet.bsky.social #severeMEday #MECFS

Elly Brosius, MS@ellybrosius· 8d

We are being cautious with foods that are known sensitivities at @renegaderesearch.bsky.social #InnovationInn as best we can. Gluten free for all. Dairy free for some. High salt, potassium as needed. Organic when available. Garden stuff, too. Also ordering clean prepared meals to save energy/time.

Pretty dinner plate with yellow and blue teapot design with eggs, quinoa bread with ghee and sautéed zucchini.

Prepared meal packaged with labels in French. Dish of produce behind.

Elly Brosius, MS@ellybrosius· 9d

Stuck on tarmac heading to #InnovationInn. Pilot has air conditioning on + my seat fan is on. Brrr. Just the way I need it to lessen OI symptoms. Feet are propped up and using my @renegaderesearch.bsky.social hoodie for lumbar support so I can slouch. Pre loaded Na, K. Did I pack everything🤔? No😢

Elly Brosius, MS@ellybrosius· May 6

Check out the Zolia Health Symptom Log's iOS or Android version. It is a NEW tracker for sx, meds, & other stuff. Great for seeing if treatments work, to remember when you start & stop taking meds, to follow certain symptoms. Log in seconds! Symptoms, Meds, Notes, Factors, Vitals, Events, Ratings.

Elly Brosius, MS@ellybrosius· Apr 24

#Quilting #Sewing #Embroidery #Awareness "Trevail" square of Forget M.E. Not Collective Quilt Project "When I became unfit to leave my house, my relationships were impacted. Many ended.... Others have attenuated.... The best have adapted.... ....my friends are of immeasurable value."

Alt text mostly stolen from Adrienne’s site.
Two interlocking friendship bracelets appliquéd on quilted white cotton. The “BEST” bracelet has burst, scattering the letter beads. The “FRIENDS” bracelet remains intact.

Elly Brosius, MS@ellybrosius· Apr 23

The collective nature of the Forget M.E. Not quilt project fosters community among widely dispersed people, connected by the common thread of living with M.E. and art. The Forget M.E. Not quilt is the collective effort of 193 people so far. forgetmenotquilt.ca

Elly Brosius, MS@ellybrosius· Apr 23

The Forget-M.E.-Not collective quilt is a venue to highlight the art, lives, and stories of people living with M.E. so they may be more seen and heard. The project enables participants to represent their story of how their lives have been impacted. forgetmenotquilt.ca/participate

Elly Brosius, MS@ellybrosius· Mar 13

TODAY 3/13 at 1 pm EDT 📢: The Hypercoagulation / Microclotting / Blood Issues Research Roundtable 2 weeks from today 3/27 at 1 pm EDT 📣: The Gut-Brain Axis and Mast Cell Connection Clinical Roundtable. Sign up at @renegaderesearch.bsky.social events page: renegade-research.org/events-list

Elly Brosius, MS@ellybrosius· Feb 24

Dr. Gold, Sleep Medicine / Pulmonary specialist, will speak at next @renegaderesearch.bsky.social Clinician's Roundtable. Sleep Dysfunction & Breathing Mechanics Friday March 6, 2026 at 1 pm Eastern US Free. Invite your networks interested in sleep. Sign up us06web.zoom.us/webinar/regi...

Elly Brosius, MS@ellybrosius· Jul 22

Sign up! Free webinar Fri 7/25 1pET Community Briefing: Coaching & Consulting Medical Program by @renegaderesearch.bsky.social 10 patients accepted to start. Need your own clinician as well, not all can afford it. By learning what it is, all may pick up tips. Link: us06web.zoom.us/webinar/regi...

Square graphic with yellow and orange spheres floating on white and orange background. Text about July 25 Community Briefing by Renegade Research about their New Coaching and Consulting Program for people with ME/CFS and/or Long Covid. Speakers are John Haughton, MD, Isabel Burnett, NBC-HWC, and Kat Boniface, Science Communicator. Time is 1 P Eastern US, 10 AM Pacific US, 6 PM GMT. Text also says it is free and all are welcome. An email address is provided: event@renegade-research.org.

Elly Brosius, MS@ellybrosius· Jun 24

Next ME/LC @renegaderesearch.bsky.social Roundtable is Fri July 11 at SPECIAL TIME of 2:30 PM EDT USA Josh Leisk, Independent Theoretical Biochemist from Sydney, Australia, known for the Born Free Protocol, and Renegade Research med director John Haughton, MD @doc4care.bsky.social Link in thread.

Orange background square graphic with info about July 11 Clinician’s Roundtable by Renegade Research featuring Joshua Leisk and John Haughton, MD, photos included. Time is 2:30 pm Eastern US. Topic is Pathways and Clinical Applications in ME/CFS. Free and open to public. Email address given is event@renegade-research.org.

Elly Brosius, MS@ellybrosius· May 7

Do sign up on the zoom page (link above) to get your copy of the New ME/CFS, LC, & IACC Clinical Care Guide by the very awesome resource generating @batemanhornecenter.bsky.social.

Elly Brosius, MS@ellybrosius· Apr 7

QR Code on Event graphic to show your non-sky friends, family, docs.

Text filled graphic with QR code for zoom event mentioned. Host: Renegade Research. Text: "Clinician's Roundtable - Orthostatic Flow Syndromes. Sometimes see in ME/CFS, POTS, fibromyalgia, migraine, brain fog, IBS, vulvodynia, ADHD. A few Slides plus Q&A." Speaker Steve Smith, MD. Fri, April 11, 2025. 10 am PT US, 1 pm ET US, 6 pm GMT. Free and open to public. event@renegade-research.org

Elly Brosius, MS@ellybrosius· Mar 15

#Caturday #LongCovidAwarenessDay #LongCovidAwarenessDay2025 5 yrs from 1st covid infection, cat and I both still experiencing odd symptoms and reactions, both still need unusual meds, supplements, foods, and care with situations to make it through our days. #StopTheSpreadOfInfections #ForPetsSake

Orange tabby with white chin resting on owner’s reclined body.

Elly Brosius, MS@ellybrosius· Feb 28

On 3/14, Fri, 1p ET US, @renegaderesearch.bsky.social is hosting a Clinician's Roundtable with Tania Dempsey, MD, in a 1 hour session on vector-borne illnesses. They often (re)appear with ME/CFS. #Lyme is one. See 🧵for more info on Dr. Dempsey. #medsky Register: us06web.zoom.us/webinar/regi...

Elly Brosius, MS@ellybrosius· Feb 26

Next @renegaderesearch.bsky.social event is the Remission Biome Protocol. Med Director John Haughton MD @doc4care.bsky.social will give the deets for docs to supervise pts following it. All 1p ET US. 3/7 - RB Protocol 3/14 - T. Dempsey, MD 3/28 - Acid Test Results renegade-research.org/events-list

Elly Brosius, MS@ellybrosius· Jan 21

Sat Feb 1, 1p ET: Clinician's Roundtable. ATTN #medsky Learn about the clinical approach to ME/CFS, Long Covid, Orthostatic Intolerance, Venous Compression Syndromes, Brain Blood flow issues & more taken by seasoned doctors Alba Azola, MD, & Peter Rowe, MD. Sign up us06web.zoom.us/webinar/regi...

Orange background graphic with photos of Alba Azola, MD, and Peter Rowe, MD. A QR code to register for Feb 1, 2025, 1 pm Eastern webinar on clinical approach to ME/CFS.

Elly Brosius, MS@ellybrosius· Jan 16

Wow! Next Week: 1/24/25, Fri, 1p ET US. Speaker Robert Naviaux, MD, (Genetics Prof UCSD) on "Cell danger response (CDR) inhibition of salugenesis—molecular and mechanical mechanisms and possible treatments in ME/CFS" Register here us06web.zoom.us/webinar/regi...

Elly Brosius, MS@ellybrosius· Dec 19

Part 1 is Jan 25, SATURDAY, 1p Eastern US (10a PT | 6p GMT) Part 2 with Drs. Rowe & Azola is a research roundtable for #medsky, pts, researchers. Both cover Orthostatic Intolerance. Part 2 is Feb 14, a FRIDAY, at 1p Eastern US (10a PT | 6p GMT) Register: us06web.zoom.us/webinar/regi...

Pink and purple background graphic with photos of speakers Peter Rowe and Alba Azola for a Renegade Research Roundtable on Feb 14, 2025, 1 pm Eastern US. Contact event@renegade-research.org with questions. Graphic also has a QR code and tiny URL for easier registration: tiny url.com/37pvps86.

Elly Brosius, MS@ellybrosius· Dec 19

@renegaderesearch.bsky.social has announced a 2 part series with @hopkinspress.bsky.social author Peter C. Rowe, MD, + Alba Azola, MD, of Johns Hopkins ME/CFS & Similar Disorder Program.🧵 Part 1 is a clinician's roundtable for #medsky, pts, caregivers. Register: us06web.zoom.us/webinar/regi...

Elly Brosius, MS@ellybrosius· Dec 6

Today's the day for the Clinician's Roundtable on ME/CFS & LC with Brayden Yellman, MD, Medical Director of the Bateman Horne Center. Here is a 50 second clip of Dr. Yellman that starts with "Even when we tried to model out ME/CFS..." and a screenshot of him.

Screenshot of dedicated ME/CFS physician Brayden Yellman, MD, Medical Director of the Bateman Horne Center in Utah.

Elly Brosius, MS@ellybrosius· Dec 4

Upcoming Clinician's Roundtable, from @renegaderesearch.bsky.social On Fri Dec 13, '24, 1p Eastern US Alba Azola, MD of JHU's CFS & Related Disorder Program (known for where Peter Rowe, MD, is) will share her clinical approach to ME/CFS & long covid. us06web.zoom.us/webinar/regi... #medSky